Well,the count down has begun! In just two weeks from to day I will be having MVD on my left side. This will be my third, and hopefully last, procedure this year. What a long year this has been.
I am so grateful to all of you who have answered my questions, gave advice, and just let me vent. This is a wonderful group!
Christine
What do they plan to do differently this time?
Did you get relief from the first one? For how long?
I had an MVD back in April but relief from it only lasted 8 weeks. I'm curious what they do when they go back in...good luck. I hope it works better this time.
How come these procedures don’t work do we no? What makes some a success and others just partially successful?? I wish there was more research… sending prayers x
I’ll be thinking of you Christine, sending positive thoughts & vibes for a successful surgery!!please update when you’re able too,
Huge ((( hugs ))), Mimi xx
@ Helen, go to the MVD group and check out my post entitled " MVD research" there are some studies ( links) that may answer your question. Mimi
Sorry, I guess I should have clarified! This MVD is on the OTHER side! Had MVD on the right in January which failed to relieve the ATN pain, so had a PNS implanted in on that side in August. We are expecting a better result on the left since I only developed ATN/TN1 on that side a year ago, as opposed to the ten years of ATN pain on the right.
Thanks for all,your good thoughts 
Christine
Shindig,
Did you ever get anywhere with the peripheral nerve stim?
Did you get relief from the first one? For how long?
I had an MVD back in April but relief from it only lasted 8 weeks. I'm curious what they do when they go back in...good luck. I hope it works better this time.
Haven't gotten anywhere with the PNS, can't get an appointment with them...I've had 2 referrals to pain specialists at UW but they don't do PNS and even though I ask for a referral to VM or Swedish who do the PNS but I keep getting referred to UW....frustrating
I had relief for 8 weeks from my mvd, then pain came back full force.
Sorry to hear ,Shindig. I am sure if is very frustrating, but I hope you keep at it. It is really hard for me to know if I ever got any real relief from MVD since I was never able to even lower my meds, due to the fact that I have bilateral ATN. I can say that the PNS really works well on the pain, and I hope you get to the right doctor!