Hi everyone,
Well Mondays the big day to meet with my sirgeon again. Alot to discuss. Left side continued symptoms afger MVD19 months ago and new onset of right sided symptoms diagnosed in Jan of this year. Just want this over with want to try and live some quality of life. If we can get on side under comtrol is my goal. Its been a rough road for over 24 years living with this pain. I am optimistic that he will beable to help me if not have a tenative appt with another neurosurgeon in June. Wish me luck and thatnks for your support!
Have a great day everyone!
My Best
Joannexo
Hi Joanne
Sounds like you’ve been very proactive and have things covered. Absolutely wishing you the very best for Monday! It’s time for your terrible suffering to end. Will be keeping an eye out for your update.
Xo Bellalarke
Thanks bellalarke, thanks for your support and i will. You as well.
My Best
Joannexo
good luck monday!
Joanne, hope you have a great appointment on Monday, make sure you are given the opportunity to get all your questions answered. Is someone going with you? It helps to remember everything that was said…
Positive vibes!
(( hugs )) Mimi
Thanks Mace and Mimi,
I had been scheduled in Feb with a diagnosis made in Jan of this year. Had to cancel due to bone infection and other reasons. I still have issues on the left side which MVD was done, but right side is quite horrifc. Made a list for him hope he gives me the time I need, has a tendency to visit in a short time. I have issues with this. I do however have another appt in june with another neurosurgeon who studied under Dr Janetta. Will see how it goes. Anxious Mimi to proceed ahead, cannot go on like this. Will keep you all posted.
My Best
Joanne
Write down questions and have them in view and they/ he might be more likely to see and respond to them. Hope it goes well!
I like your plan B -- "studied under Janetta"..... is one of my favorite sentences here!!!
Good Luck!
Hi Kc,
I am so confused. i just want to feel better. My hubby not coping with the prospect of surgery. I have held out long enough. Even having gone thru this on left he still is not understanding the pain I have everyday. He expresses he is tired of all of this? If I have to I will do this alone, but would love tomhabe him there for support. I have no life. Barely made jt out from july to now, except for appts. I do try to but it always back fires on me. Sleeping with a heating pad every single nite ti keep cool breeze or cool,air off my head. The meds are killing me. Its bad enough that you feel all alone with the monster. To feel alone period is very difficult. Its a sad day today. I do have appt with 2nd opinion surgeon June 20th. I am so very confused and alome.
My Best
Joanne
Hi Joanne
Today is one of your appointment days. I am praying you get something firm to help.
So sorry your husband is finding it hard to keep going with you on this miserable journey.
Understanding is so hard. I wish the both of you some peace in the months to come.
I live alone but I have some good friends who try to understand. It must be harder to be in a relationship and feel so alone with this disease.
So thinking of you today with your appointment.
Let us know.
All my best for you today
Bellalarke
All the best!!!!
My husband is a great guy - BUT TN challenged him more than anything else I threw at him --- the meds made me so bad he was happy to get me on the operating table.....
Do you have other supports that can be of more help to you through this??
Do you know why he is pulling back at this time?
Let us know how the appt. went.