When I sent this to Rick I thought of all the people who are suffering alone or without the understanding of friends, partners or relatives. so.....
It is good to see that so many people who actually understand your pain, fears and hopes are able to express themselves in supporting you. I join them in expressing my very best wishes and these sentiments go to anyone who is waiting for a similar procedure. I also send my warmest words of love and support to anyone who has been suffering from or is currently suffering from this horrendous condition.
I now want to add this for everyone - I wish there was a large red light that came with this condition which would flash with increasing or decreasing intensity as the pain grows or subsides as without any real visible signs you are alone. But in truth be assured there are others out there like all of us who share and understand. So as long as we are here you are never alone and even if it seems as though no one can ever understand - we do. When I had a really bad attack, so bad I could not even make it to the phone to tell the doctor I could not make an appointment, I kept remembering the people who make up this site, and it actually made life more bearable for that time. Maybe we cannot beat it, but we sure as Hell can help others bear it.
Love
Greg