So two days ago I came across this website. I was so excited, because I have felt so alone and isolated from "life". Well, I had some computer issues and couldn't use it the first day, then today the website said it was down. I felt like it just wasn't meant to be. Anyhow, I can't even say how helpful it is knowing that there are others out there that are dealing with exactly what I am. I have a very supportive boyfriend, and my mom tries to be supportive. I always feel like I wish they could experience "this" for just like TWO MINUTES. no longer because I don't really want them to have pain but just enough to understand the hell that I go through daily. Anyway, I am hoping that in time I will have more positive things to say. I hate whining, but sometimes I just have to.

Maggy, Welcome! Your are definitely not alone in this. As I tell my family & friends,. “I face my pain every day and never back down.” Be a fighter and and learn all you can about this strange creature. Its your weapon against it. Until next time…Pleasant dreams… Ms. E


I'm so sorry. It sounds like I'm at the same stage you are. Scared and hopeless and in pain.

This website seems to help a lot. I just registered for the TNA The Facial Pain Association conference in San Diego October 4-6, 2013. I'm trying to be proactive. We'll see.