Needing emotional help as tgn coming back. told surgeries failing after 17 years. alsso had 2 gamma ray proceedures. On LOTS of meds now, Really afraid and really do not like this fear,.
Got to try to work but keep getting the shocks. wouuld like to read some responses tonight when I return,
Thanks for being there and listening to me whine.
John
Hang in there John. When I am down I often read older posts on some of the group sites such as laughter and humor, the poetry one or others. Sometimes its just nice to read and see that I am not alone. You aren't alone either.
Elaine
Hi, John! I just read the following excerpt from a response you wrote, and I thought, "Who is this guy?!"
The big thing is that you think clearly and explore your options carefully and thoughtfully before you are desperate! Make your own treatment plan with the thought that "if this fails then my next step will bw..." study carefully and research well. Drs will guide you the way they were trained. Others were trained differently.The big thing is to not make a decision under pressure...know what you are doing! You are in charge of you!
It was one of the BEST pieces of advice I've seen on this site.
My TN is progressing and I'm frightened. I was just telling my husband over dinner that I am smart enough to at least try to think my way through this. I have ATN, so no surgeries for me. My plan is to hold this monster off for as many years as possible while waiting for a cure. I told my husband about my own observations of my condition and response to treatment. I have my own ideas about how to treat this (under my doctor's supervision.) I was even telling him what my next move would be.
So, your post stuck a chord with me. It made me want to find out who you are.
I am sorry to see that you are a long-time sufferer. You know you are not alone. I totally understand the depression, too. After speaking so optimistically to my spouse, I told him that it's easy to speak like that when the pain eases, but that I was actually depressed just this morning during a pain episode.
I think one's emotional state can change on a dime with this condition. Perhaps, it would help to remember that during our down times.
Nice to meet you, John.
Christi
John, I feel your pain. After 15+ years my pain has come back with a vengenance. Before it was hitting me in a spot about 2 1/2 inches above my right ear. This time, it is hiting dead center in the right ear. Talking about pain. It will make me get some where and sit down and shut up. I have actually been off work since a hospital bout in September. Doc said I couldn’t go back. Filed for disability to have it denied over and over. The stress of the denials are really geting to me. It hurts so bad. I can’t concentrate on getting better for all the stuff I have to deal with in appealing the denials. I am tired. If anyone out there have some information to help me… I need it!