I have been sitting here doing a lot of thinking. After 18 years of dealing with Typical TN, that has resulted in 4 brain surgeries in the past 4 1/2 years, I have been doing a lot of thinking about the word hope. How do you hope when dealing with TN pain? As much as I have wished, the reality is I have never been totally pain free after each of my surgeries. Thing is my partner keeps me reminding me the attacks are very few, compared to what I was dealing with before. Out comes a little glimmer of hope, then bam, another attack happens, and I find myself panicking I will tell my partner to remind me how much better things are, though far from perfect. I HATE the emotional merry go round that blasted disease has me on. I want off, and am not sure how to disembark. All I know, is I keep clinging to hope. It is just about the only thing I know to do.
((( hugs ))) I completely understand…Today I hate that this is my life…
Just had to add another med to the mix and feel horrid…
I had to choose the lesser of two evils or did I?
Finally a break from the pain, but in its place a lump if my former self lying on a couch all day dizzy, drugged up and feeling sorry for myself. Reading Facebook and wondering when I get to “live” again…
TN sucks and today has been a heavy day…
Here’s to hope and better days ahead…
Mimi xx
True! all of it ! I haven't left the house in a month or washed my hair for fear of the pain. I do hate the emotional merry go round. Why doesn't the public understand this. Like I said in my previous post, where's our help? Is any brilliant scientist looking for a cure for us? Where's our cure ?We may not die from this, In a sense our lives are over. You are blessed to have a partner that is there. You give me hope. Keep hoping and we'll get thru one day at a time.