I live in Cincinnati Ohio. Saying that we have winter ugh and fronts coming through all the time. Does anyone else find their pain is worse on these days? I get crushing burning pain from the top of my head to my top teeth(they are numb) my eye feels like it’s being ripped from my head.
I could explain it to someone by saying let me hammer nails into you eye and head, place an iron on your face, place a vice on your head, rip your eye out oh and let’s make your upper teeth numb and your right nostril burn.
So what if anything does anyone do that works? To help get through this?
Stephanie,Oh yes, I live in mi. and this weather is awful on my tn also, when it is like this not much helps me.My heated rice bag helps a little with some of the burning and some of the vice grip feeling. If nothing else it changes the feeling a little. I have been pretty miserable since we had that ice storm just before Christmas, I think.Stephanie, I read your story awhile back and I am so sorry for all you have been through and are going through. I sure hope you find relief soon. Wishing you the best and praying for painfree days ahead. Soft Hugs! dawn
I have nueropathy from my injury so there really isn’t much I can do. I pray a dr will find something though. I am getting my joint replacements on feb3 for my jaw. I hope that will help with my joint pain. I know the tn pain isn’t going anywhere.
The days I feel good and pain is at a 2-3 I smile and run around lol. As you know living where you do we don’t get many breaks from the weather. I just didn’t know if everyone else had this. I have a spinal cord stimulator in my face and head it helps with burning most of the time but doesn’t touch the other pains. I will break out my heating pad 
Living in Houston I can't begin to understand the cold you feel, but with that said cold here to us is anything below 60, lol! But seriously we have had what is cold for us here, and yes TN goes crazy when the fronts hit. Tomorrow it is going to be in the low 20's, the front is slowly blowing in and my TN is feeling it. I managed to walk the dogs this am, but with each wind gust TN was talking to me big time. I hope you can stay inside, be safe and keep warm!
Betsy
Absolutely. I live in Massachussetts and we get our share of extreme weather. Last week I was in burning, ice pick hell. It gets much worse when it's raining, snowing and/or windy. Must be barometric pressure related? I don't know but you have a good point.
Totally off the subject but I spent time every summer in Cincinnati growing up, we had family there. I remember going to a department store - was it Pogues? Oh, and Coney Island. This is back in the 60s so they may be long gone!
Hot showers help me a little, maybe it's the steam? That and my heating pad. I haven't come up with anything else that makes it better yet. I hope you found relief today and I hope your surgery next month gives you relief. It sounds like you've got so much to deal with.
oh yes...that big weather front is coming through my area just now..and my face and mouth have been on fire!
I agree with Obsidian...it does seem to be pressure related. My husband noticed before i did, but the barometric weather pressure would change and i would complain of pain. He pointed it out to me and i was like "nah, it's not that..can't be." Well, after keeping a good watch on weather vs pain...yeah, it does affect it.
Plus the just plain cold and/or wind can trigger it too. Especially the cold. I can be having a relatively pain free day with my meds..and if i get a really cold blast in the face, it's like a mouth full of acid coated knives!
So what i do...going outside..i, of course, bundle up like nobody's business and make my outside time as quick as possible.
Inside, i still try to stay good and warm. Also, warm/hot showers help me sometimes when im in pain. Not sure if it's just the water/steam..or if it's just relaxing me or what...but it does help. (plus crying in the shower is a little more private; i really don't like my 16yr old son seeing me cry)
I also take an extra baclofen. I'm on a relatively small dose of 10mg three times a day...so if the pain is bad, i take an extra 10 mgs at each of my regular doses. It makes me sleepy and kinda unable to censor thought-to-mouth ..but the pain gets better and i usually sleep for a while.
I hate winter so much...i'm always cranky, in pain, or in fear of pain...lol
C'mon 90 degree weather! (yes, i like it hot...sitting in the sun..my face feels great.)
I really hope some of the ideas you get in this thread help you. Everyone is so different and everything works for everyone...but it's good to have so many options and ideas, eh?
~Wishing you peace and some pain free days
Mistee
Yes the pressure is the big trigger. It’s amazing how related to the earth we are.
Another one that has barometric pressure triggers. It seems to be high pressure that causes me to have real breakthrough pain. The low pressure I have right now has my teeth sore, but only if I bite down on them. Obviously eating things that don't need a lot of chewing and/or chewing on the opposite side at the moment.
I feel for everyone. I'm in Illinois, and we've had one brutal winter so far. I worked outside all summer, and was fine. Then the stress triggered it all back in Sept when my mother fell ill and passed away in Oct. Other triggers have let me bare with it, while taking the Tegretol, but now with winter here - it has made matters so much worse. I have things to do, that require me to get to the car, store..whatever. This wind just literally brings tears to my eyes and shocks throughout my forehead and eye. I can't use a cover for my head/eye area, on that side. It seems that anything touching it, makes matters worse. It's gotten near impossible for me to wash that front part of my hair, much less comb it. I never thought about the barometic pressure before. Even if I pay more attention to that...it probably won't matter. Any ideas?
All the best to everyone, for as little pain as possible.
It's 0 to -10 below here now in Missouri. I've been staying inside as much as possible... I got one of those acid coated knives to the forehead just last week Mistee--- verry good description of how that felt. Owwww. I also feel those fronts when they come in. Usually when its going to rain. I'm ready for summer. :(
I cannot begin to imagine how everyone up north with TN gets through the brutal Winters. As soon as the temps fall anywhere below 70, I am in agony. I cannot even tolerate going to see a movie unless I bundle up and look like I'm visiting the Arctic because the air-conditioning is turned down so low, lol. I have found that my heating pad helps and I use that throughout the day, also hot water on a towel placed against the painful area.
I have to agree that there seems to be some relationship between TN and the air-pressure. I had a very bad flare-up last week when the first really big front came through our area. The pain level was incredible. I was out visiting some friends - I knew I shouldn't have gone out, but I was getting a serious case of cabin fever and needed to get OUT. People seriously don't understand when you are clutching at your face, but there is nothing they can see. Maybe if there was as huge burning wound with fire coming out of it, that would convince them !!! Anyway, I was in so much pain I had to leave. Driving home with TN and that level of pain was almost impossible, I had to stop every few minutes until the pain eased and then carry on. I am not going to try that again.
I wish everyone up North pain-free days and hope the Winter weather eases up.
Best Wishes,
Surfergirl
Yeah we have another front coming in here and wow I hurt. Yesterday was such a good day. My right eye is swollen my lower face and teeth are numb. I find it funny that numbness hurts. I have boring burning vice grip pain.
If I didn’t have children and grandchildren up here it would move south.
I'm with you there, Stephanie. If I didn't have the support group I have here , I would move to somewhere where the weather is almost always temperate, like Hawaii. I am grateful though for this forum and for the people who try to help me - without everyone, this pain would be unbearable, okay and also without the beach and my cat.(:-)
Hi Betsy, I also live in Houston and this last front has had my TN sining loud and clear. I know just how Stephanie feels. I tell people its like getting a tooth drilled and they hit a nerve, and then imagine living with that all the time. Most people seem to understand that better somehow than shocks or icepick stabs to the brain.
Betsy Carlson said:
Living in Houston I can't begin to understand the cold you feel, but with that said cold here to us is anything below 60, lol! But seriously we have had what is cold for us here, and yes TN goes crazy when the fronts hit. Tomorrow it is going to be in the low 20's, the front is slowly blowing in and my TN is feeling it. I managed to walk the dogs this am, but with each wind gust TN was talking to me big time. I hope you can stay inside, be safe and keep warm!
Betsy
I live in Minnesota where we have had below 0 temps and wind chills this last week. The pain in my face is bad, but I have been able to use Tylenol along with the Epitrol I take daily. I am unable to bite down without horrible pain. I wasn't sure if weather triggered pain, but after reading the notes above, I see this is true. I was diagnosed with TN in March of 2013, so this is my first winter with it. I just found this website yesterday and am happy to see such a nice place to learn more and get support.
I hear you all!!! Living in the Colorado mountains in the cold and wind are misery at times. I find myself a shut-in on the really bad days. So much so we are selling our mountian home and moving back in to the city where it will be easier to stay out of the wind and the kids will come see me more often. Right now we have a detached garage so it is either a very fast walk to the garage through the wind and cold or go out and scrape windows in the cold if I leave the car out, right by the house. I can't take either of those options some days. Our weather has had me down and out since mid December too. Let's all hope for an early warm spring. Wait....thunderstorms come in the spring.....arggg!!!!!!
Yes it is way worse for me. Even when I get in the shower and the water hits the top of my head it hurts. SMH...
My husband bought me a face shield to wear outside, it works as long as I am not going against the wind. I just try my best to not expose myself to the climate but do what I have to do when I have to do it. We are having the worst cold front that missouri has seen in 20 years. I empathize with you. I put biofreeze on my face and it helped a little. Anything I can do to help with the pain is worth a shot. I wish you warmth and pain free days.
Hi all,
I live in Canada-southern Ontario. We have a long and cold winter here. Especially this year. My TN is worse on those cold days without a doubt. I have heard many talk about the relation between cold weather and pressure. This is my first winter with TN and I have quickly noticed the correlation.
I try to stay inside on those really cold days. Applying heat to my TN side helps, either a heating pad or even a warm bath immersing the left side of my face.
Thanks everyone for your comments. This just confirmed why I am having pain during cold weather. Ready for spring.
Yes, I live in NC and though we rarely get snow I am terrified to go outside when it's cold or windy. The temp here has dropped to an all time low recently and I carry a scarf with me to wrap around my face when I go out. People laugh at me for bundling up so much but they don't understand the pain I endure. I hurt on the left side from my eye to my chin and from my nose to my ear. I've had the MVD but I still have dull pain that starts in my cheek or teeth and radiates.