Hello - I hear so much press for Cancer survivors and realize many of us are far from overcoming this horrible TN, but does anyone know if a group for "TN SURVIORS" exists?
If it does not formally exist, I would like to sponsor it or help start it or something to give the suffering majority here people to look up to and inspire us to continue to fight.
Any interest out there???
PS at this point, I need a 40-50 year plan to make it through this storm, not just a "how can get through this next few days?"
Hi, I've not heard of any groups like that. Unfortunately this illness seems to be a hidden illness and one which the media doesn't seem to have any interested in!
Great Idea Albee I do wish there was more publicity regarding TN and then people would have some understanding. Hope no one is offended but I often think at least with cancer your either dead or cured but with chronic pain you have to live with it. Mention the word cancer and of course everyone understands as they should but with chronic pain no body understands unless they have it themselves.
Albee would you know how to go about doing this and obtaining publicity for the condition?
I think it is a great idea. Seeing as to how we are labeled with having the "Suicide disease" it might be safe to say that any of us who haven't off'd ourselves (regardless of the many times we may have thought about it) are current survivors of this nasty disease. I will be at the RACE TO SAVE FACE next week and will be happy to bring it up with other patients and some people from the research team; get their thoughts and input on your idea. IF you could get out to Dover, Ohio for the race to raise awareness and funds for a cure that would be even more awesome. Please feel free to email me ■■■■■■■■■■■■■■■■■■