Setting Up a Charity for TN Sufferers

General General TN & GPN (Old Site)
1

Dear All,

I have been a sufferer for years with TN and if it wasnt for this site i think i may have taken other measures to eliminate pain which would have been both cowardly and wrong. I have had a very successful operation and i always promised myself that i would set up a charity of some sort to help others like me.

What I was wondering was if you guys can let me know what kind of support you think would be good for people. Sometimes going online is a hard task for some so i want to make it a real and personal contact. Drop me all your ideas so i can start the ball rolling. I know we all live on different parts of the planet so perhaps you can also send me information of existing support or charity work you have.

Looking forward to hearing from you all

Nadeem

2

There is no charitable contribution more important or meaningful than your TIME. My recommendation would be for you to contact the Facial Pain Association (Trigeminal Neuralgia Association), and volunteer to start and lead a support group in the area nearest your location. Their site is http://www.fpa-support.org.

Regards, Red

3

Red's idea of an in person support group is good.

what about organizing a Meet-up of LivingWithTN members?

Eric Kroll is organizing an e-book or 1 page stories from sufferers - talking of how they cope, their love of family, etc. Perhaps you can help him. check out the "Share Your Story" tab at the top.