I'm not in pain right now thanks to trileptal, lidocaine and Reiki
But I am absolutely terrified of having this MVD --- I know, I read the stats - about 0 people die from it -- I'm trying to live each day for me and cutting out those who drain me. I have one of the best surgeons in the country, I don't have to worry about work right now - I'm just all over the place:
Somedays its like whooooo I'm going swimming and organize my books and volunteer.
Somedays I do not want to get out of bed period - because despite the antidepressants -- I know that I'm going to have my skull cut in and my brain peeled over to the side!
But it's easier to not come to acceptance if I'm not in pain.
I've set the date, bought the plane tickets - How do I keep the terrification
Hi KC, Don't be terrified!! Always think positive! You sound like your in good hands. It's a Catch 22! The pain will keep getting worse, so you need the surgery. I've had two MVD's and three of different types. Always had complications, but with therapy I always get better. Most people have no problems after the MVD! I'll be praying for you and wishing you quick recovery. POSITIVE THINKING MAKES A DIFFERENCE IN RECOVERY TIME. Take care !!! Send updates! LaDonna
After 4 major surgeries for our daughter by the age of 4 years old, it never really gets easier. I have learned to keep myself busy with projects or deep cleaning the house. It is just as hard when it is your baby going under the knife. It keeps me from thinking about it so much. We had to look at the positives of having the surgery done. After her 2nd MVD, we were finally on the other side of the rainbow with a big pot of gold! Lily can live life now without worries of what is going to set off another TN attack. This year we took our 1st family vacation in over 5 years. It was amazing! She loved the ocean with the waves, breeze and misting. She swam like a fish ALL summer long. Look forward to the amazing quality of life you will get to have and all the new experiences you get to look forward too! This life that she has now is nothing short of terrific! You may have terrification now, but you will get to take off the “ation” and make it terrific! {{{HUGS}}}
Ah yes, late october in Michigan -- what a vacation it will be! LOL ---
LaDonna -- I will be continuing my MVD journey diary here on line --- looking for my positive side -- where did it go? Under the bed, hiding!
Lily's mom -- I would be even more of a wreck if it were a kiddo!!! I LOVE Terrific out of Terrification.!
Nita -- yes I'm going to write down my last wishes, find the "just in case" letters I wrote to my grown up kids -- cause I get them out every time I fly anywhere --- geez
I needed to hear that --- exactly -- "you wont stop worrying until your through and out the otherside of that anasthetic"
I guess the goal is to keep busy more- and worry less.
My goal for MVD is to come back here and encourage others on the wonders of MVD!
It is a terrifying proposition when the surgeon says we have to cut a hole into your brain, but worry never solved a problem.
I was in brutal pain before and after my discussion with the surgeon. I could NOT commit to the operation until I spoke with the most unlikely of people for me to meet. A 29 year old Jamaican woman living 1,500 miles away in South Florida. She talked me thru the process that she experienced and put me at ease.. I called the surgeon the next day and scheduled. I was operated on May 17th and have been blessed with no pain and no side effects. I will never forget the Jamican who came into my life and shared her experience with me.
You have done your research made your decision, the only left is staying positive and pray.
We’ve been to Jamaica 4 times in 6 years – beautiful spirits they have!
Jerry Parker said:
It is a terrifying proposition when the surgeon says we have to cut a hole into your brain, but worry never solved a problem.
I was in brutal pain before and after my discussion with the surgeon. I could NOT commit to the operation until I spoke with the most unlikely of people for me to meet. A 29 year old Jamaican woman living 1,500 miles away in South Florida. She talked me thru the process that she experienced and put me at ease.. I called the surgeon the next day and scheduled. I was operated on May 17th and have been blessed with no pain and no side effects. I will never forget the Jamican who came into my life and shared her experience with me.
You have done your research made your decision, the only left is staying positive and pray.