Hi Taylor,
Gosh, I could relate to so many things you wrote, one thing I wanted to share was that because my memory like yours is sooo bad I decided to buy a gigantic pill case! You know the ones that go Monday thru Sunday, and are multi colored. Yup I now have one of those, of course when friends see it they can’t help but laugh, I’m young (40) and most of their parents or grandparents have these but oh well, it helps me remember when to take my meds 3 x a day as I often forget if I’ve taken them or not.
It sucks, TN sucks!
My birthday was in April, 40 is a milestone, so I envisioned a big party to celebrate, but wouldn’t you know TN reared its ugly head and the pain was out of control, my husband decided to have a party after all and just invite our closest family and friends as they all know and understand.
I’m telling you I had mixed feelings but I supplemented my meds with Advil a lot that day, dressed up and had a great time Despite the pain!!! It wasn’t easy, I couldn’t have a drink, I still had pain but having everyone over made me feel loved and not so alone with my pain.
I would try and plan something, anything, worst case scenario you just can’t do it and you cancel! But best case, you find a way to celebrate with friends and family!
Call your neuro and see about increasing the Tegretol or adding a med to the mix. I just went through this, around my birthday I started increasing the Tegretol ( with my neuro’s advice) went from 800mg up to 1600mg before the pain was under control.
That lasted 3 mths and then we just added Neurontin. It Kills me, as I hate the meds and the process BUT the pain was kicking my a** more!
Now I’m at 1600mg Tegretol and 600mg Neurontin.
We do what we have to do .
I have put on 20lbs this past year as I developed vertigo and imbalance last November, so I’ve been off work and sitting around getting fatter!
It’s depressing, I can’t do much or I fall over or get dizzy. It’s a lose lose situation.
Soooooo, when I can I try and do squats or lie on the floor and do leg lifts. I only do 5-10 and then I’m dizzy, but frig, 5-10 is better than nothing.
I’ve also started drinking more water, every time I get the munches and want to emotionally eat, I drink a big huge glass of water and try and distract myself.
I get how you feel, I really do. And I feel like that most days, it’s so hard. BUT we need to find little things to help us along, little bright spots in our days…
I’m thinking of you…Call your neuro ASAP to adjust your meds!
Spend the day coming up with a birthday celebration idea!!
21 needs to be celebrated!!
((( hugs)))