Today is my youngest daughter's last field trip end of the year swim party. The wind is blowing min. of 20mph, and very cool. Even though there probably won't be much swimming, she was in tears because she really wanted her mom to be a driver and be there to help. She is only young once and as I know childhood gives way to being grown up way too fast. I had to take extra meds today and yesterday which I haven't had to do in so long because I've been on the good side of this nasty affliction. I just want to cry but I'm afraid it will hurt more. Thanks for listening. Gonna go get my blanket, veg with a movie, forget life....
Hate to hear you are so upset. At least as bad as my TN is my children are grown and I didn't have to deal with it when they were young. Hang in there! your daughter loves and needs you. You can make it up to her when you are having a better day!
Lee
Thanks for the kind words. Just stayed in the house, and slept. I needed to take more of my lyrica and it did allow me some relief. This evening I got to just be mom :-) My husband is so good, then I feel so guilty cause he is doing double duty working the farm, shuffling kiddos here and there, and then being my husband is a job in itself! I am going ot bed, everything is hitting really hard yet it is giving me the much needed relief. blessings~~
It is hard enough to be going thru this illness, but the guilt we carry with our children because of it makes it that much harder. Sorry you were having a bad day. I am finding this time of year difficult too with all of the end of school field trips that I am missing. Thinking of you.
Last might my 7-year-old begged me to play a game with him and I was in a big mess with my
TN, but I always try to make it up to him the best I can. They do grow so fast and I know we all want to be there the best we can for our kids. So, I truly empathsize as I have missed so many school functions due to TN.
All we can do is our best, don’t be too hard on yourself dear!
((((Collette & Kismet)))) you put into words what I feel so much. The guilt is awful. I try to tell myself what would I do for someone else if they were me. What grace, patience, kindness & hope would I give or show them? I'm not too good at it but I am trying to get better. It is comforting to hear I am not alone. I feel as if for so long I have been so alone, and try as he might, my husband doesn't always understand. I can read the frustration and disappointment in his eyes. Tonight there is a 30yr. reunion with guys he played on a championship baseball team & the graduation at our daughter's school where she is singing and he is the baseball coach. She is just a freshman, and again I am missing a milestone. I am trying to make a memory with my other kiddos at home tonight so not all is lost! Hey I have a almost 13yr ds that is excited about moving my furniture around and he's vacuuming & dusting!!! The 11yr ds is watering all my flower pots and cleaning off the front porch & arranging it the way he wants. My 8 dd is helping cook dinner. So it works tonight. Thanks for hearing my heart & truly understanding m the guilt I feel. blessings~~