Do you ever have TN pain that SO closely resembles tooth nerve pain that you doubt your diagnosis? I'm having that day where anything I drink sends pulsating pain in my teeth. It makes me want to go BACK to my dentist just for peace of mind. Even though I just had my six month checkup.
Yes, yes and yes. I want to get all the teeth on my right side pulled out because then this nightmare will be over. NOT. I can't touch that side of my mouth for just about 4 years now and I know it is wishful thinking that it is not TN. I have the classic shooting, electric pains (plus other stuff) that brings me to my knees but right now it's my teeth. With Lidocaine and not touching that side I can get through this. It's mind blowing sometimes because when I'm sitting, not eating or talking and relaxed I don't feel anything and for a split second I'll smile and think Yes I'm Cured! and then I'll move or talk or try to eat and I'll know I'm not. But for that split second it feels goooood. ;)
Jenny, I'm so glad I'm not alone. I SWEAR it's my teeth but it can't be ALL my teeth on that side, ya know? I haven't let my dentist know that my dr diagnosed me with TN, wondering if I should call, incase he wants to re-evaluate. Idk. Right now I'm completely relaxed and pain free. But this morning when I brushed my teeth, OMG. Also, in my mouth if I touch (waaayyy up near my nose) I can literally touch the nerve that's painful. It can be triggered by touching outside under my cheekbone as well but it's way more sensitive IN my mouth. Idk if that's common
Jenny2 said:
Yes, yes and yes. I want to get all the teeth on my right side pulled out because then this nightmare will be over. NOT. I can't touch that side of my mouth for just about 4 years now and I know it is wishful thinking that it is not TN. I have the classic shooting, electric pains (plus other stuff) that brings me to my knees but right now it's my teeth. With Lidocaine and not touching that side I can get through this. It's mind blowing sometimes because when I'm sitting, not eating or talking and relaxed I don't feel anything and for a split second I'll smile and think Yes I'm Cured! and then I'll move or talk or try to eat and I'll know I'm not. But for that split second it feels goooood. ;)
That's me exactly!
(I figured I would get them all out and not take a chance of not getting the right tooth. lol) Anyway, I know it's not my teeth. I was diagnosed by an endodontist years ago. I never went to my doctor. Originally I thought it was my teeth (like most do) even though I literally had just had my dentist appoinment. The Endo took xrays and did all kinds of sensitivity tests Then she pressed way in the back of my mouth and it hurt plus she said she had it too. I was shocked.
I actually told my dentist last year (don't know why I waited) and he said he has other patients too. He also suggested the Lidocaine. I told him because I wanted them to be careful cleaning my teeth even though I've never had a problem with that, thank goodness. Knock on wood. That's all I need is to jinx myself. It is nice that he knows about TN and he has also suggested some other things. I've always had a good rapor with him and and a couple of his hygentists so it's nice that I can talk to him about it and he knows what I'm talking about.
Momof3 said:
Jenny, I'm so glad I'm not alone. I SWEAR it's my teeth but it can't be ALL my teeth on that side, ya know? I haven't let my dentist know that my dr diagnosed me with TN, wondering if I should call, incase he wants to re-evaluate. Idk. Right now I'm completely relaxed and pain free. But this morning when I brushed my teeth, OMG. Also, in my mouth if I touch (waaayyy up near my nose) I can literally touch the nerve that's painful. It can be triggered by touching outside under my cheekbone as well but it's way more sensitive IN my mouth. Idk if that's common
Jenny2 said:Yes, yes and yes. I want to get all the teeth on my right side pulled out because then this nightmare will be over. NOT. I can't touch that side of my mouth for just about 4 years now and I know it is wishful thinking that it is not TN. I have the classic shooting, electric pains (plus other stuff) that brings me to my knees but right now it's my teeth. With Lidocaine and not touching that side I can get through this. It's mind blowing sometimes because when I'm sitting, not eating or talking and relaxed I don't feel anything and for a split second I'll smile and think Yes I'm Cured! and then I'll move or talk or try to eat and I'll know I'm not. But for that split second it feels goooood. ;)
I get a lot of tooth symptoms, but I have 6 branch TN and never thought I had something else. However, it tends to be periodic with the teeth, and often stays in the same area for a few weeks, which sometimes makes me wonder. My dad is a dentist, so if I'm ever in doubt if is actually a tooth or not, he checks up on me. It never has been!
The symptoms have mostly been jolts, but lately I have more pressure like sensations - often all my back or side teeth at once, and often bilaterally. I have a lot of gum and tongue sensations, too. This very moment, both my front teeth are being weird. It is not necessarily painful, but can be any sensation, from tickling to constant pressure or even what feels like my gums are relaxing.
Yes. When an episode of TN hits, the pain will go from my face into my teeth and into the surrounding jaw and cheek muscles. For me, it got so bad that my jaw would snap shut and open repeatedly. I kept having my teeth worked on because I was not diagnosed with TN and didn't know this was what needed treatment and not my teeth. I mostly keep the shocks in my face under control now by a change in lifestyle which prevents my TN from being triggered. Before I figured this out, I lost three of my back upper teeth which in hindsight should never have happened.
YES. I was positive it was my back left molar. It throbbed like an absess. But then I had an all-out three branch attack that showed me something more sinister was going on. Tegretol worked wonders though.
Tineline said:
I get a lot of tooth symptoms, but I have 6 branch TN and never thought I had something else. However, it tends to be periodic with the teeth, and often stays in the same area for a few weeks, which sometimes makes me wonder. My dad is a dentist, so if I'm ever in doubt if is actually a tooth or not, he checks up on me. It never has been!
The symptoms have mostly been jolts, but lately I have more pressure like sensations - often all my back or side teeth at once, and often bilaterally. I have a lot of gum and tongue sensations, too. This very moment, both my front teeth are being weird. It is not necessarily painful, but can be any sensation, from tickling to constant pressure or even what feels like my gums are relaxing.
Hello TineLine
I also have alot of pressure and nerve pain in my teeth! Mostly on the right where I have TN1 and Tn2.
I had an MVD in November 2014 at Johns Hopkins. There was an artery compressing on a nerve in 2 places. It is now wrapped with Telfon. The Electrical has stopped but the searing tooth pain has not.
You might think I;m crazy
but I search every way I can to stop this pain. I tried Crest Sensi Strips which I line around inside of my mouth weekly as a routine. For some reason this de sensitizes the nerves a bit. Not a 100% relief but it helps. I'm actually curious as to why? Maybe your dad would have an answer?
Anyways I wanted to share that with you
and maybe there is some help in it for you also
Stay Strong
Sandi
Sundibell
Yes I have gone to my dentist and asked for x rays I tell them it is probably my TN but just want to make sure My dentist is pretty nice about it
I go through this all of the time too. I had a root canal for no reason after this pain started two years ago. I still think to myself sometimes that it has to be a tooth. But eventually the pain will change or migrate somewhere else. I do go to the dentist sometimes just to be sure. And it's never a tooth.
Yes!
Over three years, I have had several visits to the dentist for 'tooth pain' to find there is nothing wrong. Mind you, my TN is not quite diagnosed yet officially - but each 'onset' has commenced with a visit to my long-suffering dentist soon after as I am *sure* THIS time it IS my teeth.
A few months back, I had all my usual 'TN' face and head pain - it had been there for some weeks - when a tooth began to hurt, severely. I thought - 'Oh boy, I've been thinking it is TN, when in fact this time it really is my teeth!' The foul taste in my mouth kinda sealed the deal.
I went along to the dentist again: Nothing! Nothing except for my embarrassment over begging for an emergency appointment. After that, the pain persisted. I went on to have my most severe and prolonged attack. Meds were raised to all new levels and so on
Meanwhile, my tooth still 'hurts'! It is quite the head trip (pun NOT intended!) this phenomenon. My logic tells me that the teeth are not to blame, but my brain feels twisted every time I consider that ache and where it is coming from.
Nice to know I am not the only one!
P x
Yes I have similar pain. It is mostly the second branch flaring up…are you on an anti seizure med?
When I thought it was my tooth one dentist said it was my tooth. So I went to another one to get it pulled. He said there was nothing wrong w the tooth. I was really confused. Still am.
sundibell said:
Hello TineLine
I also have alot of pressure and nerve pain in my teeth! Mostly on the right where I have TN1 and Tn2.
I had an MVD in November 2014 at Johns Hopkins. There was an artery compressing on a nerve in 2 places. It is now wrapped with Telfon. The Electrical has stopped but the searing tooth pain has not.
You might think I;m crazy
but I search every way I can to stop this pain. I tried Crest Sensi Strips which I line around inside of my mouth weekly as a routine. For some reason this de sensitizes the nerves a bit. Not a 100% relief but it helps. I'm actually curious as to why? Maybe your dad would have an answer?
Anyways I wanted to share that with you
and maybe there is some help in it for you also
Stay Strong
Sandi
Sundibell
I know this is an old thread, but I just saw it and wanted to make a comment, as I could have been the one writing the original post. Everyday, I question whether I need to see my dentist. Before being diagnosed, I was at my dentist weekly. I spent thousands upon thousands of dollars for root canals, which were all unnecessary, since my dentist did not know what was causing my pain. (I wish dental students would have to spend a day during their schooling with a real live TN sufferer lecturing them on this disease, so they would recognize it when a patient comes to their office). Anyway, even years later, I still second guess every pain, as it imitates a tooth abscess, or an exposed nerve on a regular basis. When the pain moves to a different part of my mouth, then I relax knowing it is my TN. I feel for you, as I know how debilitating this is. One of my biggest fears is travelling now, never knowing when there will be a severe flare-up when I am far from home, knowing my insurance probably will not cover anything of a pre-existing nature - but with a new grandbaby in a different country, I am SO torn. This week I have to have some work done on my teeth since I have receding gums and this time there is sensitivity due to the root nerves being exposed - not simply a TN issue. The dentist (and I have a new one who is more understanding and knowledgeable about TN) is going to do all of my teeth at one sitting in the hopes of minimizing multiple flare-ups - which means freezing all parts of my mouth for a 1 1/2 hr appt, followed by a 1 hour cleaning while I am still frozen. I cannot even begin to describe how much I am dreading this, but he assures me my dental woes will become real emergencies, if I don't take care of my teeth now. While at my exam, I was asked to hold a mirror so he could show me what he wants to do, and I was shaking so bad I could hardly see the mirror. My muscles start spasming from being absolutely tight and tense the entire time I am in the chair. Only a fellow sufferer can understand this. I can only imagine how bad this will flare up the TN and how long the recovery will be after 2 1/2 hours in a dentist chair. So all this to say that I totally understand, and my sympathies are with all of you who suffer with this TN dental pain. It is indeed a trial of huge proportions.
I've had my teeth checked soo many times- I have one particular (lower jaw) tooth which aches all the time, and then I get aches at times top and bottom, tingling lips. I have neck trouble and when I get tension knots in my neck it sets it all off worse, but not sure why, as I think the knots are below where the Trigeminal nerve would be. It's helped with amitriptyline but never goes completely.
My "indicators" that mean an attack is coming resemble an ear infection. I get painful swallowing and pain behind my ear. I'm very newly diagnosed but I think it can take many forms and come on in many ways.
It's too late for me now - I had 2 molars removed because I didn't want to believe the pain in my mouth and teeth were from TN. The extractions caused complications which I'm working with right now. I'm having much worse pain from these complications than I ever had with TN. So please believe your dentists when they say there's nothing wrong with your teeth. I went to 10 different dentists and had x-rays each time, and they all said it was TN and not the teeth. But I stubbornly had 2 molars removed anyway, which caused much worse problems. I'm taking Tegretol now and I think it's helping with TN because I can brush my teeth on the left side now and there are no more earaches or face pain. I'll know more when the extraction sites and jaw bone heals, which could take many months. I just have to live with my mistakes and without being able to chew like I used to. I should have researched TN more on the internet and learned more about it before making such a drastic decision. There should be more publicity about TN in the media so this doesn't happen to others.
And more awareness with dentists!!