I note that I thanked Ben Munoz for welcoming me into our community on November 1, 2008.
I stumbled upon us, looking for support in my ongoing battles with everything; I do mean EVERYTHING, that Trigeminal Neuralgia can possibly 'offer' to an adult.
Yes, two years here and I missed about three of those years...ranting and raving in the uncertainties. It was mostly about me!Some of my early posts are downright embarrassing - I wouldn't edit or delete them for anything. I believe they show a progression of wellness.
Noteworthy is that I have asked for help and I say thank you. I / We can not afford to dwell on our misfortunes.
Sharing and caring has taken a wonderful twist in my life. I read with empathy, so many stories of hardship and struggle. Then I read in joy, the 'good ones', the successful stories.
Having few answers, I do offer HOPE. I wish to walk alongside, with you, as I still stumble.
With great respect and gratitude to every member of our community, I do love and I thank you, bob
You are great Bob, you have been a real tonic to me. Wish I had found this site years ago. Never really looked though as I felt alone. Though I still get that demon in my face, I have found this site lifts my mood as I am with people who know and understand. Thank you Margaret
Tonic here in Staffordshire means you have uplifted my spirits (not the type you find in a bottle) We can speak a very broad English here, it is a lovely slang ( I think ). Anyway thanks for being there for me, now I shall be franked for my snapping if I don’t go. ( late for my meal) Hope you have a good day Bob. Love Margaret
Bob,
I have thoroughly enjoyed all your posts, emails and your humor. I joined Dec 7th, 2008. You have been an inspiration to me and to so many. And I thank you.
Liz
If I only had your attitude. But I have learned that I am so fortunate. There are a lot of success stories but there are also many who struggle so much more than I do. I am thankful and I try to remember to be thankful every day no matter how good or bad the day is.
Hi Bob, I'm Penlady in Twitter. You have really been through the mill with this. I'm in Canada where they told me the MVD surgery is not covered under the social medicine program. It confused me, making me wonder why they would want to have to pay disability and a lifetime of pain meds rather than just cure it. Their explanation was that they found that the majority of those surgeries developed scar tissue within 2 years, and the scar tissue conducted electrical shocks worse than before the surgery. So next I thought about Gamma knife surgery. I was even going to ask parliament to cover the procedure, but it seems you had that too, without success.
I learned there is another cause of TN, which is the type I have. Instead of my TN being trapped, there is an engorged artery laying aling the TN, and every time that artery pulsates, it hits the TN. I know a man in Hungary who had surgery for it. They put a small silicone flat coin looking thing between the nerve and the artery, and after 4 years, so far so good. Not available in Canada yet.
You wrote the above post almost 2 years to the day of being welcomed here. Now you're a moderator, and you are certainly qualified!
