Whoah! I haven't been on here in a long time! Here's an update as to what has been going on since I last posted.
My TN has progressed from being V1 to now taking hold of V2 and V3 (right side). I have gone through all of the medications out there and now I am currently on a new form of Neurotin that was recently released on the market. I am still on a daily dose of Percocet (1 at night only) and need Tylenol just to get me through the day. I didn't use to get severe attacks, but for the past 2 months I have been crippled by the sudden onset of the electrical currents and 'on fire' feel that lasts days. I have gone through a few other nerve blocks to no avail and did a second Balloon Compression, which seems to have irritated the V2 nerve. So, I've been scheduled to go under the knife again for my second microvascular decompression surgery. This time, my neurosurgeon is going to have a secondary doctor and may attempt to actually stitch the imposing artery to my skull wall so that it will not fall on the nerve again.
Hopefully this will work longer than is did last time (the effects only lasted 10 weeks before the symptoms returned). Until then, I'm excited and counting down the days for the relief!
Have a great day, everyone!
Sounds like they have a great idea there! Maybe this should be done ALL the time. When are you scheduled? And please keep us posted after surgery, or have someone else do it for you. ((((((((((HUGS)))))))))))
KatieLiszak, Hoping everything goes perfectly for you and this time it lasts! I have Atypical TN, on the meds, after a month, wants to try nerve block (never had, not even sure how they do this) if that does not work, then Gamma? It's a pain management doc. Hope I'm doing the right thing. Good Luck to you, DT
Im very curious how your 2nd MVD worked out?I have been pain free for almost 3 1/2 years and TN has returned.Im curious also if you had any dental work done the times you were pain free?
Thanks everyone! My surgery for the 2nd MVD is scheduled for June 10, 2013. Brian, no I have not had any dental work done - Not sure if my poor nerve could handle it. Daryla, nerve blocks tend to help but they are not a long lasting solution. I'm not even considering Gamma because every review I've read about it does not produce good results. You could try a balloon compression, that helped me for a bit until the numbness wore off.
I will keep everyone updated after my surgery!! Much love to you all! <3 <3
I am new to this site. I am learning so much. I never knew a second MVD was even an option. I can't wait to hear the result.
It seems my pattern has always been that the doctors tell me the surgery will cure me for life and, of course, that did not happen in my case until, perhaps, the second Cyberknife.
Wish you all the best.