I know that someone here posted about running a 5K I think. I have looked for the thread but can't find it. Is there a way to search for it besides going one thread to another....thanks......
http://www.livingwithtn.org/forum/topics/i-ran-my-first-5k-since-pns-placement-surgery
Maybe that's it?
Hi I posted that thread!! I run several times a week. In fact just got in from running a beautiful 5k up on the trail. I have a special mask that is perfect for TN. It covers my cheeks, ears, nose and mouth. It just has vents for breathing. I put a little hand warmer in the cheek area and it keeps my TN under control. It has been a huge blessing because it has allowed me to run in the cold weather 
Are you a runner? I ran the 5 mile RACE TO SAVE FACE last summer. It was a benefit for TN research. I am training to run a half next summer:)
Thanks Tina!! YES LISA!!! I used to be in what I call "the first another life" aka before kids and marriage! lol! I have run off and on over the past 30 years since high school college time, and I really really need to do something for me to get me moving. What kid of face mask? Right now I will start running on my tread mill and work up to outside. Right now it is a huge storm going though. I can use any info and tips you can give. I want to run in a 5k that is near me on my bday in March. I have a ton of questions, do you mind if I send you a friend request so I can "talk"? If you don't get one that means I couldn't figure it out. blessings~~
http://www.livingwithtn.org/forum/topics/raising-awareness-our-race…
Oops looks like im late…didnt see the other replies! Lol Was this it? Mimi
Yes it was a great article!!! I am hoping to connect with Lisa and "pick her brain" about how she has done this!! Wanna join us Mimi? Tina?