I must have spent nearly 2 weeks in pain. Oh gods how do people do months, I really can't wrap my head around it, and I am terrified that this is what will happen. But I haven't really been cohnerent enough to write out what happened to me other than in bullet points. The last few days I have been, so now I will.
As for anyone who has followed my story I wound up in TWO ER's (A&E as it is over here in the UK) I was out and about waiting for my boyfriend to show up when I gained yet another prolonged bout Wednesday last week. I was out of my tree, I used cold water inside my mouth to keep the pain at bay, then on the way to the A&E by bus I ran out of water. I was hitting the roof on a crowded bus. There was a woman in front of me, concerned and caring, she never said a word, but you can read a lot in the eyes of a stranger, and hers told me plenty. I ended up off the bus fairly quickly just to get a bottle of water and walked with the boyfriend to the hospital.
Once there I was told to wait in a queue behind a line. I was sobbing my eyes out and the reception staff behind their glass barricaded room just stared whilst another woman dilly dallied in booking in her sister. They finally opened another section to deal with me, but I couldn't speak, so I wrote it all down, med levels the condition, what had happened EVERYTHING. I was seen by a processing officer, a triage nurse and finally a doctor
I was given Tramadol (NEVER AGAIN WILL I TAKE IT) and was also give Diclofenac and paracetemol. The med student told me that both these meds would work just fine in conjunction with TN - I knew better I told her no, I have tried this, it didn't work. I was told to 'humour her'. I did. the pain died down to a spike every five mins instead of every 30 seconds and she sent me home. I was completely out of my tree. I walked to the main town barely noticing roads or people. I was virtually a human pinball. I got on a bus home and half way I had to get off to start throwing up. That didn't stop until 4pm on Thursday when I was prescribed domperidone by my GP.
But back to Wednesday evening pain was horrific, I was throwing up couldn't keep water down. I spoke to Red briefly in chat and he suggested I go back to the ER that had given me Tramadol, but the way I was feeling it was out of the question. I called my out of hours GP and they suggested I go the ER nearest to me, it seems I was having a bad reaction to Tramadol. I went and was seen pretty quickly, though I did throw up two times whilst there. The doctor and he was definitely a doctor, talked things over with me, talked about my knowledge of the condition (which was more than he - but we aren't surprised about this are we). He also suggested that whatever they did that night I was to go to my GP the following morning. He finally settled on Oramorph, which worked for about 20 minutes. That was when I puked and it felt like someone was ripping my jaw off as I did. I was on my way home then.
I had intermittent 10 minute dozes, I was so exhausted I didn't know what to do with myself , I got an emergency appointment wit on of the doctors at my surgery and headed down, hoping they would listen to the ER doctors recommendation of me seeing a neurologist. Yeah that hope got dashed at that hurdle, but they have added Amitriptyline which makes me slightly hyper and a little sleepy but does immense work for me, so I can not complain.