I don't know what to tell you? I just about drove myself crazy trying to find an answer and it wasn't until they opened me up did the problem get resolved. I searched necrotic bone, blood supply to the teeth, went for oxidation treatments, you name it. No one wanted to deal with my mouth and no one would even do a blood test to check for white blood cell count. I lost four teeth on the left side from the trauma of surgery and the lack of blood supply, and abcess. My lips were turning blue... It is so hard to say what your problem is because it sounds like multiple problems.
when you talk about your tongue and the itching verses pain I think of what I've heard from people who have Lingual nerve injury? My friend has that and the right side of his tongue and cheek are numb, and he has pain. Some of the itching that I had in my face went away and I think it was the nerves trying to reconnect and heal? I don't know. The itching in my gums went away after they removed the abcess and treated me with antibiotics. It actually ate a hole through my gum tissue and still no one to open me up and see what was going on. Thus four teeth are dead and will have to be replaced with implants. I am very thankful that my tongue was not affected at all. I have my taste and smell.
I don't know what to say Nir? All I know is that I didn't stop looking for answers until I found somone who would listen and care about my wellbeing enough to take on my very complicated dental case. Personally, I have found the best care in the hands of those who are of the christian faith. Since my experience I kind of try to make it a prerequisite for my health and dental care and unfortunately because of my nightmarish experience I have also developed PTSD with dentistry and medicine. I'm very careful to treat with those who share my same beliefs!
Nir Morita said:
dear Sunshine -
thanks for the reply. so much great info.
did you also have severe pain ? the "itchy" feeling is when i don't get pain - than it's the itchs feeling .. sometimes burn (like somebody scratched my inside of the mouth) . it's also on the end (far side) of the tongue. many kinds of pains and feelings.
i KNOW something is physically wrong. not something heroic or mysterious to the medical world . something simple - but that has to be found.
i also have degenerative (i think that's the word) changes in teeth. but the doesn't explain the pain (accrding to dcoros).
how long did you suffer ? did it started after a dental work ?
you are very right. i also though of an infection (small one) in the gums (i did a dental cleaning before it all started). or in the bone.
were the shawoes in your CT were explained ? is it normal ? it's starnge i have these "shadows" in the side of the pain.
about your theory of malparctice. maybe.
i know for a fact some doctor look at me see my misreable face - and don't want to get into that story. why would they.
THE PROBLEM IS - THEY DON'T REALLY INVEST TO TRY.
why were you become doctors if not help people in real need for that ?
i wait monthes for an appointemt.. to famous doctors names.. and than they see you for 5 minutes... and say "You have to clean better you teeth. otherwise - no problem.
etc.
also the dental Surgeons here - are a joke. sorry to say.
one can say - that i can look at it differently - they just don't know. when all the X RAYS are fine - their hands are tied.
as for the infection theory - i though about it myself. and even went to several specialist in infective disease (not for the teeth. maybe to hear thier opinions).
my though that even the slightest change in the nerve - pressure - of a small infection - can cause such trouble.
at my case - at first my face became a bit "Deformed" i've had a change in my face. like they were "tilted" (don't know to explain) so maybe some mechnical pressure involved. i just DON'T know. and tired of trying to fight this and figure this out alone.
i'm glad you found this doctor that was willing to do so and "open" you. wish i was in the US. doctors here are very limited in thier willing to really do something.
the "funny" thing is , that in their web sites they "brag" about treating people with deformed face, doing complicated surgeons... but opening the gums to find out what - they won't do that.
maybe they are right - and it can cause great risk, as one doctor told me. maybe.
another problem i have - is the the pain is sometime up and sometimes down in the mouth. if they "open" the gums - i really don't know which side i "want" them to open first. i know it's all sounds imaginary. but at least in this site people really understands.
so did he opened your gums and just like that saw the cause for the problem ? was the opening from the front side ? or back of teeth ? would like to hear more about that.
ICAT - NEVER heard of that. just checked it out. it looks like a CT .
i've done 4 (!) CT''S and 2 full body "bone scans" in one year !!!! (that's except for the regular XRAYS they do me all the time) . it's enormous amount of radation. i can't do another CT'S i guess :( (by the way - the first "bone scan" showed a problematic "hot spot" in my jaw- which wasn't explain till now.
never heard of bioesthetic dentist. i'll check it out. i'm sure there are none in Israel .
you are so right - i DO know that i'm right in presisting (even when i went to 3-4-5 doctors A WEEK for about 1.5 years (i am not exaerating!) , i feel something's wrong in the mouth. god . and my bite isn't that well (it was perfect 2 years ago. and now it's not. i don't know what is the reason and what is the cause).
also i mentioned my face had changed since that. i had long gentle face before. and not it's like the bones grew bigger - idon't know if it's a muscle activety in the area.. or i'm putting stress on the muscles.. but i've lost my look. it's not THAT terrible.. but yes. it really effects me when i look in the mirror. a person have to like himself (inside and outside) . it really upsets me that will all the story - even after it ended - what it had done to the bones of my face won't be able to fix.
thanks for the reply.. and letting me "take stuff" out of my heart.
maybe i'll write you a personal msg.