MVD June 20th

Right now I am sitting at the airport in Alabama waiting to leave for Maryland to have MVD surgery at Johns Hopkins with Dr. Lim and Dr. Ahm I think it is??
But they said I have to stay up there two weeks so they can keep an eye on me. Did anybody else have to have a watchful eye on them or were the doctors like free to go??
I realize I’m 16 with this but I didn’t know if anybody else was like this.

hi Kelly, they are probably just giving you a longer time frame , doesn’t mean you’ll have to stay there that long.But it’s better to stay and be looked after to ensure there’s no complications, before they send you home.
positive thoughts and vibes, I pray you’ll have a successful outcome.
I’m 10 weeks post op , no pain!
take good care of you, be sure to update when you’re able too.
(( hugs )) Mimi

Please look at my picture I just
Uploaded. Did you have to get these things; if so, what for?

Thank you for the encouraging words! I’m happy to hear you are pain free! They said that I am at higher risk of the wound not heeling and having tangled vessels because I have the genetic disorder ED

No, I didn’t have those, unless they placed them while I was under…

The two week stay makes more sense now if there could be longer healing time.

Better to be under their care longer then face issues at home. Sounds like you will be in good hands.

In my experience the fear and anxiety before the mvd was way worse then the recovery. Just listen to your body and don’t be afraid to ask the nurses for whatever you need while you’re in the hospital. If you get TN pain after the mvd, don’t be discouraged either, it takes time for the nerve to heal, up to 6 months to a year.

Thinking of you!! Mimi xx