I had my MVD done 3 months ago at Johns Hopkins and all went very smoothly for me. I am 68 and had type 1 TN. I feel I was very fortunate because I had very little postop pain, slept very well on the hospital pillows, had very good range of head motion, and did deep breathing as soon as I was conscious. I was so prepared mentally for the procedure, others couldn't understand why I wasn't frightened. I had full confidence in the neurosurgeon (Dr.Ben Carson) and the entire team at Hopkins. I knew I was in the right place and was eagerly looking forward to getting this done and getting on with my life. I confidently & calmly put my life in God's hands. As for a few practical suggestions:
I had bedroom slippers with a good nonskid sole and an elastic band that secured them on my foot so I felt very stable as I walked the halls.
I took laxatives and stool softeners (I had a bottle of prune juice in my hotel room, too).
My partner brought me Mountain Dew to drink on day 1 because I was so used to drinking caffeine I had a caffeine withdrawl headache.
My lips were very dry so I used a good moisturizer on them.
I had a handicapped hotel room & the grab rails in the bathroom were helpful, especially when I showered. I put a plastic chair in the shower, sat on it, and my longtime nurse friend helped me shampoo my hair. I held a rolled up towel tightly over my incision.
When I went outside the hotel for walks, I draped a soft scarf over my head since my incision was exposed. I covered my head when I was in the airport, too.
Request a wheelchair, if you are flying. I felt like walking, but wasn't sure how far the gate was.
Use acetone to remove the gooey gel stuck in your hair.
Although I felt great after one week, I still forced myself to take a midday nap--my body liked the rest time. I continued 1/2 hour naps for about 3 weeks.
I live in the Florida Keys and had the surgery in Baltimore. I am a retired open heart surgery nurse so most of the preparation was no surprise for me. I was able to have both my significant other and my longtime nurse friend there with me. My significant other supported me with caring love, and my nurse friend was in an adjoining hotel room and was there to help with any medical issue that may have come up. She laughs because she never had to do anything but shampoo my hair. But she was there if I needed her. As it turned out, we 3 were able to explore Baltimore a little bit and when we walked down the street for lunch, I had someone to walk on each side of me--I felt very secure & never had a stability issue. My entire experience went flawlessly and I don't regret for a minute having had the surgery.
I wish you the very best, Aimee!