I am having almost daily flares now....it is no fun at all....I tried to eat a steak tonight and I am so regretting it...Lidocaine patch on....fiorcet taken and 5mg flexaril....I have about a month and half before I see a neurologist.... My internist has ordered a pain cream from a compound pharmacy but I still haven't received it as of yet!
Just needed to stop by and vent a moment...my parents are friends don't understand....they sympathize with me but don't know much about it....
Even if I have a flare I power through it because I have recently separated from my husband(who is addicted to alcohol and narcotics) and I really don't have time for TN!
And Thank you for the Stages ...describes me perfectly....Thank you so much!!! My son calls !!
Have you done lidocaine mouthwash… Numb so you can eat better…
As very young I had addict husband…you can only take care of yourself and those who don’t drag you down… Alonon meetings helped me get well of his sickness!
That stinks. I would kill to be able to eat a nice medium rare rib-eye steak right now, a really juicy and a little bloody, with some nice butter melted on top. Sigh.... I know how you feel. For this past month so far I have not been able to eat anything other mush foods. The closest thing I have been able to eat at times that is not mush is a grilled cheese sandwich that has been soaking in tomato soup until it is really mushy, but the chew factor of the cheese still makes this really hard to eat. Due to only being able to eat mush foods I'm not very hungry, or do not feel like eating, and very very picky about what I will eat. My husband has been very understanding about it and feels bad about it. Just the other night only being able to eat mushy foods was one of things that frustrated me and made me cry and part of my melt down. It sucks big time. Hang in there it will get better. You will be able to eat a nice juicy steak again sometime soon. Hope you have a great day that is pain free.
I know the feeling especially when you are hungry and something smells so good. My wife is an amazing cook, the smells from the kitchen are always great but I know how much it's going to hurt. It bothers her that I often cry out while eating. I can't take the chance of being in a restaurant, that's too embarrassing unless I'm in a remission period. Hopefully you will soon be in a remission period yourself and be able to enjoy your favorite meal. When the time comes that you are able to eat pain free, please make sure to lavish yourself with what you truly enjoy. I have learned to appreciate taste and texture more (on good days) since T.N. entered my life. All the best to you
I know what you mean. Sometimes just after the flare up ends I stuff whatever I am eating in my mouth. Then the next flare up hits and I do it again. Or knowing I am in pain anyway I just stuff the food down while going thru the pain. Really I would think I would be skinny with TN but I haven't lost anything.