so tired today, was a good day yesterday until i dared to try and eat something last night, really bad flare up. managed to get couple of hours sleep if that. this condition takes a lot of adjusting to, need to treat it aith some respect. i try and carry on as normal but not possible, i am relising that now. if i have a beer i might as well not take my gabapentin, smoking sets it off, cold sets it off, if i try and sleep on my right side it sets it off, just one of those things i suppose, i need to accept it and adjust my life accordingly.
it is stressful to have to adjust every action of your day to avoid triggers. i went for surgery as soon as i could get it. with all the hoops that was about 6 months with my aetna health plan. if your fine living on meds for the rest of your life, and modifying everything to fit around the tn, stay on the path your on. hang in there
This disease is horrible. I lost 10lbs due to not being able to eat. I found that eating baked potatoes (mashed of course), oatmeal, scrambled eggs, soup n if course baby food helped me. Everything needed to be at room temperature but I ate. I also found through this support group that there are lidocaine patches and mouth wash that should help. I’m currently trying to get. Stay strong. Sorry your in so much pain.