Oh my good golly! I finally got a pain management doctor that listen, cared, and believed me about the extent of the pain I am in. He also treated me like a human being, not some crazed junky looking for their next fix. This is such a relief. Especially after the last month with the last pain doctor. The thought of getting back to work, school, and my life in general (to some degree of what it was) is so exciting. Sorry this is may seem so silly, but I've been in horrible (as I'm sure most of us are or have been) pain this last month. All I want to do is just be able to do is; eat something without the huge fear of pain that comes with eating, be able to actually talk instead of the yes no conversations of head nodding I've had, and not let the pain rule everything I do. Is that really too much to ask?
That's fantastic that you've found a doctor who might be able to help you. Hopefully his treatments or choice of med combos will help you manage your pain enough that you will get your life back. I understand how exciting that prospect is, and hope and positive thinking really does help your treatment work better. For me, finding a doctor who understood and cared made a huge difference in my own thinking. Hope is a powerful thing, and I'm glad he gave you some.
I am glad that you have found a good doctor . I have the same experience as you when I first had the pain . Be prepared to tolerate the side effects ,if any, and the frustrations of getting the right combo of meds in your journey ahead. However, there is always hope that you are pain free. Blessings…
My goal this weekend is just to be able to eat again. The pain was so bad I stopped eating. I have an appointment with my general doctor, and I'm hoping he will release me back to work. It is crazy how many doctors are out there that are unsympathetic to those who suffer from chronic illness and pain. I don't understand that at all. It has totally changed my perspective on dealing with my TN.
Please do not stop eating. Try drinking milk and fresh fruit juice. You may need a blender to make some vegetable juice . Carrots and green apples juice tastes delicious . All kind of fluid will be helpful.
I completely understand the desire to stop eating. I have been on different colors of pureed meals for almost six months, and after a while I just lost interest in eating altogether. I am trying now to find some things that are not unidentifiable food sources, but maybe soft enough for me to smash between my tongue & palate (w/o using my teeth). I'm still very new to the forum, so I'll be anxious to hear if you find a regimen that allows you to eat again. Thank God for hope. I wish you the best.
Dear Kari -
it's not silly at all - finding a doctor that willing to escort you - is a WHOLE world.
what did he suggest to you ? can you share with us ?
i know the feeling of going back to life and work..i want to be at that point again to.
Thanks guys:) over the weekend mu family and I went on our annual camping trip up at the cascade locks. It was a big little step for me as I’ve been locked in the house scared of the wind, rain, and anything else old man weather would throw at me. I also got to enjoy some food that involved a little chewing. Yeah me. I miss food. These are just little baby steps but it’s a huge turn around from where I was a month ago.
As for my new doctor he put me back Lyrica and changed my time released narcotic. He also suggested I start seeing a therapist that deals with chronic illnesses; to help me deal with my feelings about having two seperate illnesses that cause chronic pain. I was diagnose with having Fibromyalgia as well last week before I saw the new pain managment doctor. Today I had an appointment with my general doctor and he was impressed that I was starting to look better. Gained a whole pound and smiled during our vist, he stated he had not seen me smile in over a month. I am stressed out that I have another month before getting released back to work; need to build the lyrica back up to 400mg a day, and get use to the new narcotic.
This is just such a rough road to travel. Though you all know that by now. Thank you for the kind words advice and encouragement
encouraging news! hang in there. Kari. hope is a powerful medicine