I know I posted a couple weeks ago about my experience with a new doctor in pain management. I wrote a letter tonight explaining my position and told him I would no longer need his services.
After speaking with you guys, close friends and family I felt good about my decision. I am also contacting my neurologist and asking for a referral to a neurologist who has treated ATN. I may have some options in NC, too.
Life has been a roller coaster lately and I am choosing to be my own advocate. My husband doesn’t understand. I suppose it’s hard to understand when you can’t see something wrong.
I’m back to eating once a day, if that. I’ve already lost three pounds since my visit with that doctor. I’m trying to take extra neurontin, as advised, but I’m so loopy! Maybe in a week or so I’ll get used to it. I can’t say I’ve noticed a difference with the baclofen, but I’m about to increase the dose as advised to see if it helps.
I feel so lost and hurt. This pain and frustration is making me easily agitated. I pray. God do I pray.
So glad to hear that u stood up for yourself and are not backing down. It seems we have all been on this horrible roller coaster ride at some point. Everyday I pray to get off of it!! YOU truly are the only one who can fight for yourself. TN has a way of making us some of the strongest people alive. I will keep u in my thoughts and prayers…keep us posted!! ((HUGS))
Hi Kismet..sometimes, it helps to sit down in a comfortable environment with your husband, speak quietly but firmly. Explain that you need help and understanding at this point in your life. Inform him about TN.and show him our site. Many of us have shared your experience. You're not alone. And for most, this approach is very helpful. And if that doesn't work, let him know that there exists a TN Husband Hit Squad that visits late a night, armed with TN Love-Reminder darts. And if that doesn't work, tell him he's going to end up like the Doctor..( hope your sense of humor is working or I'm in deep trouble.)
Kismet,
Ian so glad that you decided to stand for your self in this and be your own advocate. Good for you! Can I suggest when you do go to the new doctor to take your spouse with you. Sometimes that need to hear it from a doctor for some reason to start to understand what is unseeable. I hope you have great day and it is pain free.