So many emotions. I wouldn’t know where to start to list them. The pain of TN is mostly unbearable. And then having other things in life piled up on top of TN you wonder sometimes if there is really a God. I have had a really tough week. I even cried at work one day. I just don’t think anyone understands me. Some days I just want to stay in bed and let the world go on without me. I honestly don’t care anymore. I have so many people trying to give me advice as to what they think I should do but I don’t know what I WANT to do. I’m so depressed and sad all the time, I would rather just stay in bed. It is hard to get up and be a good mom, try to work full time, TRY to keep my house in order (which isn’t even happening anymore), I barely even talk to my husband anymore. I hardly ever even see him, and when I do we never even speak about anything but the kids. And that is only if my TN allows me to speak. I swear I need a counselor or something. How do you speak to a counselor when half the time you cannot “speak”! Good Grief! Anyway, this is just MY blog, this is just ME getting my feelings out, this is just ME venting. I can’t talk to ANYONE! This is my outlet. Thanks everyone for listening! I love my TN Friends, thank you so much for understanding me. I love you all and pray that you all get thru this somehow! HUGS TO YOU ALL! I’ll keep you all in my prayers!
Oh Robbie, I'm so sorry - this is such a life changing event. I went to see a counselor about it when it started, because I simply could not find my way. It sounds like a really good idea. Please don't underestimate the power that this disease has to upset our lives. Please also come and talk to us when you need us - you are not an island unto yourself - you are here with us all.
Hugs,
Lily
Thanks Lily.
Robbie,
I am so sorry. I know it is very difficult. I know I am thankful I don’t have to take care of any children and be a wife. Having TN affects my decision on getting married. Right now I am doing okay but not good. Please try to hang on and ask for different meds. Don’t give up. I just went through 4 other meds and found one that is working okay. It was doing much better but for some reason it isn’t now. TN does have its ups and downs. And it is so easy to get depressed. I’ll keep you in my prayers but I pray for all of us. A lot of us know the difficulty of not being able to speak. I looked at your profile but I have a hard time reading some of the profiles with color. And with these meds, I forget what procedures some have had. What type of treatments have you tried?
Liz
Hi Robbie!
It sounds as if your are the peak of your frustration level. Go back to your Neurologist. Try new treatments. Don't quite. From the large number of posts I have read on here, there are treatments that can provide some relief, even if short term. Don't give up.
Elaine