Hi glad to see some of you were able to get CP Disability. Just wondered if you did the forms by yourself or used the National Benefits Assn listed on this site? I am considering applying as my TN is getting worse. Even after Gamma Knife. Had a bit of remission which was pure heaven but now I am increasing my meds and I do not like my side effects , especially when there are more important things I want and need to do with my life at present.
I would like to hear from my Canadian friends. I am in
PS. Get your Dr to sign a disability form for a handicapped parking permit. Great for winter and breezy days
PPS. If you go to. dr get a letter for the appt saying you require a support person and Via Rail will let that support person travel free. Also hotels like in Toronto offer special rates for rooms and parking
your friend in pain and still up at 2.30 am due to pain not subsiding
Hi Chippy. Sorry to hear that TN is giving you a rough and painful time. I live in Alberta and was approved for a CP disability due to my TN pain about 2 yrs. ago. But anyway, I believe I filled out the forms myself (with a little help from my hubby). It’s important to show your pain levels; medications and amounts and their effects on you (brain fog; impairment; inability to work; Severe pain; tiredness; slurred or incoherent speech; inability to…whatever it is that affects you; etc). They are looking for certain words to prove your inability to work full time. Letters from your Dr. and Neurologist are very important and helpful. I have had TN for 6 yrs now. Had MVD on my left side with some relief but not all, then the right side started with a zap in my cheek and then the left side mainly in my eye and cheek upper jaw area started again. Good luck with your paperwork!
I'm looking into applying as well but only found a 6 page application which makes no mention of the disability? Do I send in first part and wait for response or have I missed a link?
Bonnie Gray said:
Hi Chippy. Sorry to hear that TN is giving you a rough and painful time. I live in Alberta and was approved for a CP disability due to my TN pain about 2 yrs. ago. But anyway, I believe I filled out the forms myself (with a little help from my hubby). It's important to show your pain levels; medications and amounts and their effects on you (brain fog; impairment; inability to work; Severe pain; tiredness; slurred or incoherent speech; inability to....whatever it is that affects you; etc). They are looking for certain words to prove your inability to work full time. Letters from your Dr. and Neurologist are very important and helpful. I have had TN for 6 yrs now. Had MVD on my left side with some relief but not all, then the right side started with a zap in my cheek and then the left side mainly in my eye and cheek upper jaw area started again. Good luck with your paperwork!
Just went back I only clicked the first link wow thats a lot of paperwork yuck.
Cangirl said:
I'm looking into applying as well but only found a 6 page application which makes no mention of the disability? Do I send in first part and wait for response or have I missed a link?
Bonnie Gray said:
Hi Chippy. Sorry to hear that TN is giving you a rough and painful time. I live in Alberta and was approved for a CP disability due to my TN pain about 2 yrs. ago. But anyway, I believe I filled out the forms myself (with a little help from my hubby). It's important to show your pain levels; medications and amounts and their effects on you (brain fog; impairment; inability to work; Severe pain; tiredness; slurred or incoherent speech; inability to....whatever it is that affects you; etc). They are looking for certain words to prove your inability to work full time. Letters from your Dr. and Neurologist are very important and helpful. I have had TN for 6 yrs now. Had MVD on my left side with some relief but not all, then the right side started with a zap in my cheek and then the left side mainly in my eye and cheek upper jaw area started again. Good luck with your paperwork!
Hi Chippy did you apply for CPPD?
I applied last summer and started receiving it this past December ( 2014).
It’s a lot of paperwork, and I took my time filling it all out. I found it all a bit stressful.
Hope this finds you well…