You need to read the book "Striking Back " by Dr. Ken Casey ---- Ask your dr. to call you in Lidocaine patches or cream for your face --- you should be able to reduce your meds some what if you put that on your face. Learn everything you can. There is no cure --- only remission - The more you read, or have somebody help you research, the more your chance to get a better life!
Amen, Sistaah!
How do I do this pretty much by myself? I have lost any help I had,do to job my mom has done all she can do, she still trys at 86. My mom is awesome! She still tries. My daughterblew up at me yesterday.Everything was ok last night.I know she is sick of dealing with me and hearing me complain how bad I hurt, I try not too. It iis so hard not to complain.She has her life and her family. I have tried not to ask her to do much then the shopping. She is the only one that can shop for me.So I really do’nt want to ask her for much more.I guess, at this point, I don 't know what to do I hurt I 'm scared.what do I do now,?HELP I FEEL LIKE I AM SINKING!
Dawnare u on meds have u tried a procedure to help u do u have a Dr it is hard for people to understand and i know it is frustrating for us my prayers are with u
KC, sorry to hear about your health. Thinking of you and praying for you!
Thanks KC Dancer.
Dawn it sounds like you may need more pain control. Maybe go back to your doc and ask him for an increase? But let him know you are suffering and its affecting your life. Best wishes to you, and I hope you feel better soon.
BUMP
Denial…that’s where I’m mostly at and it’s comfortable here for now. I think I just defused a flair-up with 100 mg of Tegretol and I feel ok. I’m doing my research, have the printer firing up, and I’ve got everything neatly in a binder with the thought that in a few days the neuro will say I don’t really have TN and I can toss all these papers out. If this is real for me, it’s nice to know I can come here, where others understand 
Time for tears later…
Kc, thanks for posting that again and you probably couldn't of picked a better time for Austin and I.Anger and depression have been out of control with me later and we are at a lost where to go next. I think Austin and I are going to do a blog together, concerning some of this and other issues that Austin said, we can't be the only ones going through thisor Kc wouldn't be reposting this again.Thanks Kc, AUSTIN. SOFT HUGS dawn
I hope you find some peace soon! Both of you!
Bump
BUMP
BUMP
Well said Jackie, and Thanks KC for some thoughts that we are all working through. I do not live in the land of denial anymore, or actually depression. I have been suffering so many years, had radiation 2 surgeries, doctors that made a mistake that took my very playful, fun loving life away from me. So I did hit all those mile stones, and I hit them hard. But I got to tell you with the "I'm fine" thing, I choose to use it every time. When someone asks me how u feeling I just say that and move on. I live with this hell probably 70% of my life. When I am out or answering a phone I want to do catch-ups and chat. That's how I own it and live with it on my own terms...Love and a peaceful day to all of us
Well said Jackie, and Thanks KC for some thoughts that we are all working through. I do not live in the land of denial anymore, or actually depression. I have been suffering so many years, had radiation 2 surgeries, doctors that made a mistake that took my very playful, fun loving life away from me. So I did hit all those mile stones, and I hit them hard. But I got to tell you with the "I'm fine" thing, I choose to use it every time. When someone asks me how u feeling I just say that and move on. I live with this hell probably 70% of my life. When I am out or answering a phone I want to do catch-ups and chat. That's how I own it and live with it on my own. .Love and a peaceful day to all of us....When I need to get it all out there...you are my peeps. I am blessed with a husband and 2 loving sons that would and continue to do anything to make my life easier. BUT they still don't know what the pain feels like. They imagine the worst, but all of u guys know. Thanks again for having this place to go to....
Just what I needed <3
I recently married to my long distance boyfriend. My TN and operations followed unsuccessfully. He looks devastated and I have trouble not going to bed in late afternoon and staying there. That is my screaming time if I am in a flair. May loose my marriage. Ideas??
Not only can the patient s go through these cycle but also your love one . Because no one wants the one they love to be sick or suffer
Jackie-
I would say that we may all look at anger differently. Anger almost helps me, it is depression which paralyzes. When I feel depressed about my TN, I just feel like I can’t do anything, so why bother. But when I get angry, then I want to figure out what I CAN do. That’s when I research, exercise, watch my diet, and care for my self better.
It was anger, with myself, the situation, and with the oblivious world which led me to this group, and which is helping me to redetermine my limits and abilities. For me, anger is what leads to acceptance.
Which is why I think the no rules approach is correct: you have created for yourself an understanding of anger as non-productive, I have the opposite sensation. Both are perfectly acceptable ways to grieve and to find acceptance.
Jackie said:
I especially like the comment about no rules, no order. I hear so much from members who just cannot move from one level to another that may, and I say may be more comfortable. A recent discussion about anger was very well subscribed to and I was actually taken aback at the anger within the group. I think as I am older than the average member I have seen and had so much and lost loved ones as well. I taught myself a long time ago that anger is a waste of my energy and try to move on as quick as I can by diversion, this can be very difficult to convey without appearing arrogant and cocky. Also it can be damaging for some. I wish everyone the best with this and really admire the fortitude of so many with so much to bear.