Icequeen welcome! I know we all feel like you do at various times. I hope you will get much friendship and uplifting at this site. We all know what you're going through.
Best wishes, Sheila
icequeen said:
Thank you for this post! I just joined this community yesterday. This article brought a tear to my eye. I'm struggling with the limitations of TN and not feeling like a failure.
Oh Roselyn,
I don't know how to say this, but I cannot find respect for people who are treating you like this ON TOP OF a diagnosis as critical as TN - they, as family, should be supporting you, not insinuating fault - YOU ARE NOT DOING THIS TO YOURSELF! I feel really mad reading your post and am torn in writing these words knowing that I am speaking about your family and wanting to respect your relationship with them - but how hurtful - how really hurtful of them. I am sending you hugs, from someone who understands.
Lily
Roselyn said:
Oh man. Number 10 is a big one for me. Everyone in my family keeps asking me, in different shades of subtlety, if I got TN because I'm overweight. My step-father the other night explained it this way "well, if the problem is that you have a vein touching a nerve, maybe if you lost some weight there would be more room and they wouldn't touch!"
(I'm at least 99% sure my weight problem isn't in my skull....)
Anyway, thank you so much for this list. I need to print it out and hang it next to me bed.
Hi Roselyn,
That is a big one for me too! I had a baby 8 months ago and my TN went into overdrive! So I haven't been able to lose most of the baby weight. I saw a neurologist who told me my #1 priority right now should be to lose weight and not my TN!!!!!! Needless to say I won't be seeing him again!
This was a great post!
Roselyn said:
Oh man. Number 10 is a big one for me. Everyone in my family keeps asking me, in different shades of subtlety, if I got TN because I'm overweight. My step-father the other night explained it this way "well, if the problem is that you have a vein touching a nerve, maybe if you lost some weight there would be more room and they wouldn't touch!"
(I'm at least 99% sure my weight problem isn't in my skull....)
Anyway, thank you so much for this list. I need to print it out and hang it next to me bed.
Great post sweet friend