OK Pam I’m a bit nervous!!! X
I know exactly how you feel. I can be pain free and then get up in front of a class (of high schoolers also) and start to give them a lesson and the pain hits because I'm trying to project my voice and I guess it's opening my mouth a little wider that triggers it. So excruciating to continue and I must look like total crap with my eye twitching and watering. Then my nose starts to run and I can't wipe it because it hurts too much. Lately, I've taken to sitting in the back of the class room with all of the desks facing the front and teach from there. What about if you get a fm transmitter to project your voice - it's an accommodation that perhaps the district will pay for if you get a dr. note saying you need one. It's hard, but I'm managing. The worst part is feeling sorry for myself because that makes me cry and then it really acts up.
cris said:
Helen,
Your a teacher? I am also - had my MVD April 12, was on medical leave from Feb til we started back 4 weeks ago. Whew...my body was not ready to return and I was not having hardly any pain UNTIL 2 weeks ago. The pain is coming back with a vengeance and I know it's all the talking, cold air conditioning, constant going of teaching 140 high schoolers...
I've been teaching for 9 years and have really worked hard to make the culinary program at my school into something to be proud of (inherited a mess). NOW - I can't sleep (not on any meds), am waking up - dreaming of being the classroom - in intense pain. I've talked about this with my husband...he so wonderful, but doesn't get that work is bringing all of this back and I'm getting so depressed. My income is important - but - my health was so much better 3 weeks ago.. I want / need to quit, but I've worked all my life and I feel like I'm letting EVERYONE down...it doesn't help that my students (my second and third year stu's) are constantly telling me how glad they are that I'm back. Ugh. Have a doc appt tomorrow - need to talk about possible disability...not sure how to bring it up. I HATE SEEMING WEAK.
Yep, I too grieve (or maybe just p.o.'ed) for what's gone; what I can't do anymore...why can't it just get better and stay there...the moments of reprieve are torture.
Dear Lord, help.
Oh cris I’m so sorry. Teaching is impossible with this. I’m due to go back once I’ve had my nerve block in a few weeks and I’m going to give special needs a go. There is no way I can whole class teach anymore. Don’t feel embarrassed about disability its just going to be essential. I was considering more one to one work. Have u thought of a change? Trouble is its so painful I think we find any type of work impossible. My love to u xx
Completely crushed for many years. My problem is that I can not sleep well because of my symptoms. It is very much an unrelenting struggle.
…went to the doc last Friday, he flat out told me I need to stop teaching. I cried for an hour…knew it was probably coming, but it still was so heartbreaking! My doc wrote a poinent letter to give to work. I have not had a chance to speak with my principal yet- he is so busy. I’m out today with pains from no air conditioning at school yesterday and the ambient temp was 85-95 in the classroom for hours…outside was 93 and then air conditioning everywhere else…MAN the jolts! …think he’s p.o.'ed with me not there (you know, those emails that don’t say much but mean alot…)
Ugh.
Helen, bless your heart - I teach Culinary Arts, I’m a certified culinary chef, so I’m not endorsed to teach any other subjects…this is my third career (RN for 12 years, culinary school & working Chef for 4 years and culinary instructor for 9 years). …just don’t think I’m up to starting all over again…
I know my Lord has a plan - I know my strength comes from Him and I pray for guidance. I pray for all of us…
Cris that’s devestating and I’m having a cry. I’m so sorry. I’ve spoken to hr today and they were very supportive. My family r convinced the nerve block will fix me. I hope it brings plenty of relief but I do understand its temporary. 3 wks to go. Saying my prayers for u lively lady xx
Hi Don. I understand. Without the correct level of anti seizure drugs the pain at night is horrible. I’m going to the doctors in the morning. Much love xl
DL
I can feel your ‘pain’!! - with my job, I have a classroom, a full commercial kitchen lab and a running restaurant for the largest high school in my area with the ‘flag ship’ culinary program for the whole of our district. Before all of this, the challenge of such a HUGE responsibility was what made my blood move a little faster…loved it! Now…totally terrifies me that when the jolts come, they will not go away. My MVD was a success, but here lately seems like I’m going backwards. My TN II is rearing its ugle head BUT praise God above the TN I is better…I so appreciate your suggestions! I hope these modifications work for you and you can do what we both love for as long as you want. 
DL said:
I know exactly how you feel. I can be pain free and then get up in front of a class (of high schoolers also) and start to give them a lesson and the pain hits because I’m trying to project my voice and I guess it’s opening my mouth a little wider that triggers it. So excruciating to continue and I must look like total crap with my eye twitching and watering. Then my nose starts to run and I can’t wipe it because it hurts too much. Lately, I’ve taken to sitting in the back of the class room with all of the desks facing the front and teach from there. What about if you get a fm transmitter to project your voice - it’s an accommodation that perhaps the district will pay for if you get a dr. note saying you need one. It’s hard, but I’m managing. The worst part is feeling sorry for myself because that makes me cry and then it really acts up.
cris said:Helen,
Your a teacher? I am also - had my MVD April 12, was on medical leave from Feb til we started back 4 weeks ago. Whew…my body was not ready to return and I was not having hardly any pain UNTIL 2 weeks ago. The pain is coming back with a vengeance and I know it’s all the talking, cold air conditioning, constant going of teaching 140 high schoolers…
I’ve been teaching for 9 years and have really worked hard to make the culinary program at my school into something to be proud of (inherited a mess). NOW - I can’t sleep (not on any meds), am waking up - dreaming of being the classroom - in intense pain. I’ve talked about this with my husband…he so wonderful, but doesn’t get that work is bringing all of this back and I’m getting so depressed. My income is important - but - my health was so much better 3 weeks ago… I want / need to quit, but I’ve worked all my life and I feel like I’m letting EVERYONE down…it doesn’t help that my students (my second and third year stu’s) are constantly telling me how glad they are that I’m back. Ugh. Have a doc appt tomorrow - need to talk about possible disability…not sure how to bring it up. I HATE SEEMING WEAK.
Yep, I too grieve (or maybe just p.o.'ed) for what’s gone; what I can’t do anymore…why can’t it just get better and stay there…the moments of reprieve are torture.
Dear Lord, help.
Hmm yes we r a flagship school too. I’ve been a big part of our schools success for 10 yrs now and my head keeps urging me to remember who I am and not give up. All v difficult xx
I did not explain my situation well. I do take prescriptions pills before I go to sleep that make me drowsy. I just experience a lot of pain when I sleep because the pain is triggered much more easily when I am sleeping. The pain is triggered by air flow inside my nasal passage.
shindig said:
Don, are you on any opiates?
The neuro gave me oxycontin time release to take before bed and I sleep pretty well now.
Ouch Don u poor thing. X
Don, could you get Lidocaine liquid that you could swab inside of your nose...not sure if it would help, but probably worth a try.
Pam
Yes Liliacatnap, you get a gold star because in the last 6 months I have tried Lidocaine solution, teracaine and clonidine solutions way inside the nasal passage. You get a big gold star because I had seen at least a hundred doctors over 20 years all over the country. Only the last doctor I am currently seeing ordered liquid lidocaine solution for me to apply inside my nose with a long qtip on a daily basis. I keep the qtip in there for 15 minutes and apply it 3-4 times a day. Seems like an obvious thing to recommend and I asked a few doctors myself too but they would not do it. It helps lower pain during the day somewhat so that I can function somewhat, I still am very irritated. But it does not stop the problem when I fall asleep.
I am fighting to keep my life I’m depressed and I feel scared of loosing my jop… It deserves I’ll try lidocain swap but what’s the concentration that can give an effect
dodo,
You need a doctor to figure the % out. I believe I was given a lidocaine hydrochloried topical solution usp,4%, but I am not 100% sure.
Thank you don I’ll try it’s much better than side effects of antiepileptics
Oh dodo I think lots of us have the same fears. I just know I couldn’t do my job by the end of last academic year. Terrible. I have liocaine patches and xylocaine spray for inside my mouth. X
I just interviewed for a job today. My husband wants me to go back to work so badly. He doesn’t push me but I am so nervous about the cognitive issues and being tired all of the time. Not to mention the pain. Scared I won’t be able to hide it. We need the money though. But if I get a job, and he doesn’t help around the house or with the kids, then what will I do? Aghhhhh! I’m so nervous!
Oh Helen it's so good to have someone come out and say this. It's been said by others before, but for those of us living with type 2, well me at least, it's good to be reminded that others also have thoughts and feelings like my own.
Type 2 just dominates (I'll talk in the first person) my life.
Wake during the night with head pain. I wake in the am and register the amount of pain I have... will I take pain relief? How much? Will dose tolerance develop?
The day goes on, the pain/nausea increases.. do I dope up again? I struggle to cook tea, watch TV, decide I can avoid the pain by going to sleep. And return to my night time routine. Some nights the pain / nausea is so bad I take pain relief. And on some occasions wake feeling relatively pan free. Wonderful! Of course it all starts again later.
Every activity I might plan, or get invited to is qualified by how will I be feeling, how much pain/nausea? Can I handle it? It just gets in the way of everything. It is usually first and foremost in all my waking thoughts, almost obsessively. It takes a great deal of effort or distraction to avoid it.
And this is how live. Type 2 is just my life, and I work to keep involved and integrated into other things. It is not easy.
So I guess rather than overwhelmed I just live it. I don't have many personal responsibilities, so there's not much to overwhelm. If I had responsibilities etc then yes. All the best. I'm in this with you. Cheers, Craig.
Oh Anna. I’m sending love. I completely understand its a scary business XXX
Ana Soosani said:
I just interviewed for a job today. My husband wants me to go back to work so badly. He doesn’t push me but I am so nervous about the cognitive issues and being tired all of the time. Not to mention the pain. Scared I won’t be able to hide it. We need the money though. But if I get a job, and he doesn’t help around the house or with the kids, then what will I do? Aghhhhh! I’m so nervous!