Hi,
Can anyone tell me what to do when you are in severe pain. No medications work, no ice packs,warm packs work. Just have to wait for the pain to become less. When is severe pain i just want to end myself.
Please help.
Khushi, Before my gamma knife surgery, I would just lie in bed on my right side with my right eye buried in a pack of ice. I took Imitrex and Percocet -- as much as allowed. It helped me sleep through it. My worst pain would last usually about a day and tolerable for the rest of the time. As I lay in bed, trying to sleep, listening to my clock chime through each hour, I just prayed. I prayed mostly for other people -- took my mind off myself. I petted my cat and dog, who just laid in bed beside me. Heaven only knows how I got my dog walked during these times. At one point, when it was 100 degrees last summer here in Richmond, VA, I had to ask a neighbor to walk my dog because I was afraid I would pass out.
Watching TV, reading, etc. was impossible because my pain was mostly in my eye. When awake, I would have bouts of crying -- it tended to relieve the pain temporarily. I couldn't eat much -- I survived the day on flu-like food -- chicken noodle soup, crackers, jello w/ fruit, peaches, bananas, and peanut butter & jelly sandwiches.
Have you tried amitriptyline (Elavil)? I also get relief from sumitriptan (Imitrex), which is commonly prescribed for migraine.
Since my GK surgery, I have only had a few bad days. My neurosurgeon says it'll eventually get even better. The other night I woke up at 3:00 a.m. with a razor blade in my right eye. Imitrex fixed it.
Hi CindyLou,
Thanks for your revert. I have not tried amitriptyline (Elavil). I am having Lybotryp xl 25mg tablet daily once a day. This tablet is for letting you sleep, but when the severe attack comes, i am helpless. I also just lay in bed with my eyes shut and just pray that this phase pass. I have lost my appetite. Just drink fluids, the same way you did. I don't feel like going to work or meeting someone as i am in constant pain.
I am fortunate that (so far) medication has nearly eradicated my pain. Before I was diagnosed, however, the only thing that I found that helped when I was in excruciating pain was apply pressure to various points on my face and neck.
I missed A LOT of work. I was afraid I'd lose it. So far my attorneys have been understanding. They've seen me in the throes of a flare, so I think they get it. I have found ways to entertain myself on feel-good days. I'm not as social as I once was.
Khushi said:
Hi CindyLou,
Thanks for your revert. I have not tried amitriptyline (Elavil). I am having Lybotryp xl 25mg tablet daily once a day. This tablet is for letting you sleep, but when the severe attack comes, i am helpless. I also just lay in bed with my eyes shut and just pray that this phase pass. I have lost my appetite. Just drink fluids, the same way you did. I don't feel like going to work or meeting someone as i am in constant pain.
Hi Khushi,
I so understand what you are going through and wish that I had some magic advise to offer you. I don`t feel social at all when I am in pain and really just want to go to bed. Sometimes if I rest in a dark room things calm down a bit. You are already doing the hot and cold. Both can help sometimes. I also use voltaren emugel and it can help a bit.
I find that I focus on my breathing when the pain is too much to handle. Like labour breathing. It helps me with the short, intense bolts and electrical shocks. It is just pure agony.
My Dr. gave me some Clonazapam so that I can calm down and get a good nights` sleep after a painful day. I find that my anxiety (and no doubt my blood pressure) really rise during a flare and I think they contribute to my pain.
Unfortunately, sometimes nothing works. That is when I say to myself that it will move, it will end, it always does.
Hang in there!
Jane
Thanks Jane for understanding and giving me advise. Will surely try the breathing option when in pain. Lets see if it can ease the pain.
Thanks !
justjane37 said:
Hi Khushi,
I so understand what you are going through and wish that I had some magic advise to offer you. I don`t feel social at all when I am in pain and really just want to go to bed. Sometimes if I rest in a dark room things calm down a bit. You are already doing the hot and cold. Both can help sometimes. I also use voltaren emugel and it can help a bit.
I find that I focus on my breathing when the pain is too much to handle. Like labour breathing. It helps me with the short, intense bolts and electrical shocks. It is just pure agony.
My Dr. gave me some Clonazapam so that I can calm down and get a good nights` sleep after a painful day. I find that my anxiety (and no doubt my blood pressure) really rise during a flare and I think they contribute to my pain.
Unfortunately, sometimes nothing works. That is when I say to myself that it will move, it will end, it always does.
Hang in there!
Jane
Same here Cindy, but sometimes you don't feel like getting up or doing something. Just lay in a dark room and just sleep.
Last week my left eye was swollen coz of this pain. Let's see how this week passes.
CindyLou said:
I missed A LOT of work. I was afraid I'd lose it. So far my attorneys have been understanding. They've seen me in the throes of a flare, so I think they get it. I have found ways to entertain myself on feel-good days. I'm not as social as I once was.
Khushi said:Hi CindyLou,
Thanks for your revert. I have not tried amitriptyline (Elavil). I am having Lybotryp xl 25mg tablet daily once a day. This tablet is for letting you sleep, but when the severe attack comes, i am helpless. I also just lay in bed with my eyes shut and just pray that this phase pass. I have lost my appetite. Just drink fluids, the same way you did. I don't feel like going to work or meeting someone as i am in constant pain.
Thanks Jeff for the reply. I will surely apply pressure to the points on my face and neck. Let's see if this works. Till yet I have applied hot and cold packs when in severe pain.
Jeff said:
I am fortunate that (so far) medication has nearly eradicated my pain. Before I was diagnosed, however, the only thing that I found that helped when I was in excruciating pain was apply pressure to various points on my face and neck.
I Understand, it is important that you are not alone at that time. I just had three days in a row of facial pain and all I can do is scream and keep my oxycodone next to me and my phone and I push my sons number and he comes running when he hears me screaming.He asks me how much Oxi I took counted the pills to make sure I did not take more that dosage. My TN usually wakes me up in the am so now I am on two anti seizure meds.I set my alarm at 8 hour intervals to make sure I wake up and take it. I wish I had an aswer for you but try to find a neuro surgeon that has experience in this field and get it taken care of.
Best to you
Robin
When I was struggling through farming I used to sing in my head a song from an old friend. One day at a time Sweet Jesus, that all I'm asking of you.. I'm not religious like she was, but the one day at a time is all we can do now.
Thankfully I have type 2 and its bearable but the frozen bag of peas on my head does work, and a hat seems to steady the nerves and keep them warm.
Hi,
Thanks for sharing. Will keep in mind and surely will do.
farmeress said:
When I was struggling through farming I used to sing in my head a song from an old friend. One day at a time Sweet Jesus, that all I'm asking of you.. I'm not religious like she was, but the one day at a time is all we can do now.
Thankfully I have type 2 and its bearable but the frozen bag of peas on my head does work, and a hat seems to steady the nerves and keep them warm.