How many out there get facial twitches and tics? I have started getting them all the time in the past 2 months. Mainly around my eye. They are not painful but are very annoying. What can I do to get them to stop?
It could be a side effect of one of your medications. Are you taking ambient or Lunesta for insomnia? I’ve seen it happen with both of those.
Not on either of those. I take lyrica and amitriptyline. I mentioned it to my new Neuro the other day. They had no suggestion either.
This seems to be a quite common symptom..."Some patients experience muscle spasm, which led to the original term for TN of "tic douloureux" ("tic", meaning 'spasm', and "douloureux", meaning 'painful', in French)."
from http://en.wikipedia.org/wiki/Neuralgia
I also experience this...medications not affecting
I have numbness since my MVD 6 weeks ago. The numbness is slowly decreasing but I have strange sensations that feel like twitches and pulling on the right side of my face. It is bad enough to wake me at night. I am not on any of the meds you mentioned.
I've had TN for 14 years, (twitches for longer) and there's nothing I can do to rid myself from them. It's just part of the "neurological dance",,, boogie on,,,
I also take amitriptyline,,, really helps me sleep.
Yeah, it puts me out too.
Not the medication. It is the nature of this terrible illness.
Walter
Twitches have come and gone over the last couple if years. Nothing has helped. I do believe that they were worsened when I tried Ketamine cream. Strange but true.
Twitches around my eye. They’ve stopped now and may have been linked to nausea med I was taking.
Yeh, I get twitches from time to time in my right eye. I haven't found anything I can do to stop it though. I don't think it's meds, I think it's the TN... I've only ever had the eye twitches when I'm on no meds!
I have very occasional twitches under/around my rt eye and rt lower lip. Maybe they're connected to heat and/or overdoing something - walking, housework, cooking, etc. TN is one of my MS syndromes. Oh well :-/.
Days of no pain to all of us ;-)
I had mvd surgery in 2010. My nerves were harder to get to. I did get to lower and get rid of some of the meds. 1 year ago it started to slowly.come back. It got horrible again so bad. My neuro put me on 1800 mil of gabapentin which i was on before my surgery. He also.upped my lamictal. All of it worked eventualy. I did also get staff 2 weeks after surgery. Had a pic line for 6 weeks notun. Anyway i have not felt right since my surgery. Loss of some memory, i cant get the words out, kindcca stumbly at times. I went on a cruise it relaxed me so much. I really noticed i have twitches all over my body occationly. My boyfriend of 7 years then told me i do it in bed. Not sure if its meds or something else. Has anyone experienced anything like this? Ive got a little more shaking in my hand . Had a small shake for a longtime. Im frusterated. I lost insurance. Now what.
I too believe it is characteristic of the disorder.
I have had facial twitches for years before diagnosed and even now with medication. Besides my face twitching my legs jump too. Yes, very annoying and sometimes I slap my face to make it go away. BTW that does help any LOL I wish I could get rid of this annoying pain TN causes.
Hi,
I don't get it often, but magnesium really works to calm tics and twitches. Hope this helps!
Brian,
Those are the 2 meds my neuro wants to put me on - do you have any side effects from either? Very nervous about starting a new med because I had horrible side effects form Tegretol.
Brian M Howard said:
Not on either of those. I take lyrica and amitriptyline. I mentioned it to my new Neuro the other day. They had no suggestion either.
Has anyone tried a muscle relaxer? I was thinking of asking for one. Lately it has been for hours at a time constantly twitching…driving me absolutely mad,
Hi, I've been on amitriptyline (with others) for a year and have occasional eye or nostril twitches but, more often, in my leg muscles! Not sure if it's the meds or the neuralgia prob. Thank goodness it's not more pain though eh? I've tried magnesium, vit B (#?), and evening primrose oil - all meant to help nerve issues, (but no difference for me). Worth a try though. Good wishes, Dove.