Trigeminal Neuralgia aNd Me (www.tnnme.com)

1

Hello all, whoa i didnt know there were a heap of you in this group. Infact i didnt even know this group had existed. Hope you are all painfree and in good health. My names Lagi and im from Auckland NZ. I was diagnosed with TN at the age of 26. At the time i was told by neuro to be the youngest known in medical statistics in NZ. I was painfree and drugfree for almost 2years until the beast came back last September. 8months ago myself and 7other sufferers from around the world formed a group and now website called TNNME (Trigeminal Neuralgia aNd Me). We have started a petition which is circulating to see if we can get WHO to add TN to the Health Topics list. We have also decided that with their approval or not we will be celebrating our first ever Awareness Day on the 7th of October 2013. We have started making noise as we have now sent out 2 Press Releases, Ive had radio interviews, my story in magazine and preparing for a story with the NZ Herald. Weve also created our 1st Official TN Teal Ribbon which also can be purchased via our website. All proceedings go towards Facial Pain Research and Facial Pain Association for more funding towards a cure. Please feel free to head to our website and sign petition. Also share this website with family and friends. If you have any other questions dont hesitate to reply to this message and i will be more than happy to try and answer your question.