This pain is new ,had my MVD 17 months ago, good for 6 months then ,BAM! This sharp, stabbing pain in this area is new the jolt lasts for maybe 10 seconds but there is pain also in the back of my head at incisional site. On the right side at the crown to back of my head. Neurosurgeon newly diagnosed TN on right side. That pain will start late in the day. The left side in the cheek, gums and now temple and eye. Could use some insight at my wits end?
My Best
Joanne
So Sorry you had a mvd and going through so much pain!! Im so angry and sad for you!! I have type 2 pain They found compressions on me on both sides at this time I will not do surgery considering the statistics are not good for type 2 patients. I do not have shocking pains or triggers just constant aching pain all the time I have nerve pain in all my teeth cheeks behind my eyes which has been sharp pain that was in the beggining the pain has changed through the months down to a aching behind the eyes and my right temple was the worst pain i got crushing felt like a metal bar was going through my head. I hope you have the support of someone in your life! My nerve pain changed around when I started doing chiropractic It never healed me but did help with the pain and I would still be going if i had the money or insurance. When I was at my end I started nortriptyline a tricylic anti depressent Im at 75 mg now and went from being bedridden to up all day doing stuff and able to hang with friends again able to workout I still have pain but not as bad Im always nervous that I will go back to being really bad but not much I can do at this point but hang in. At first I was embarressed about my disease now I tell everyone I know in hopes it will make a difference. I have pain in the back of my head too like ive been beaten with a bat. but check with ur neurosurgeon about that pain. If you want to talk more I would be happy to friend me and inbox me Hang in there darlin!!
Jstagrl29
Thanks so much for your heartfelt concern,it is tough, another bad day its 4:44pm mynfavorite number , time my daughter was born. I find my only reprieve is in sleeping and its becming more of what I do to stay pain free. The pains have worsen overe the months and am considering MVD again on left side . I just cannot continue my existence in pain 24/7. Waiting for my daughternto be out of school for the year, shes a teacher. Will need abit of help formfirst few weeks or so. I need to have it on my right side also. Wondering if the doc can go in onetime and correct noth sides at once. Just explaining to my daughter that I feel gd first 15 to 20 minutes after getting up from sleep , then the pain and sharp stabbing pains begin. By nite time its gottin the best if me . My ritual is take my meds and wrap the heating pad around my head to keep the cool breeze I feel in my home off my head. This is a terrible for me. Imdont know about you but each side of TN has different symptoms. My first attack was 23 years ago and it lasted for A whole year. Went away and reintroduced itself to me 4 years ago and has been by my side ever since. Surgery went well for me and I do not regret having it. I was feeling pretty good for 6 months then BAM! Have been Lot of meds for a long time just do not work any longer. Sorry that you dont have insurance so you could continue with what was helping you. I live in Mass. Required to have insurance but if you cannot afford it the state kicks in. Does your state have this available you should check out. Thanks again for your warm thoughts, means so much
My Best
Joanne( tatto20)