Hi I was DX with MS in 2006. My TN started to be unbearable about then which I have been living with since 1998. I was told because of my lesion in my cerebellum. I would have to control it with carbarmazepine. I started at 400 mg and now I am 1000 mg a day. My neurologist would like to try a office procedure called (SPG). I would like to know if anyone has tried this and if there was any complications to this procedure.? I have TN on my left side and right side of my face. thank you.
Hello. I can’t sleep and was reading through posts. I’ve had this block done after describing my Left sided TN to a very insensitive non listening lady resort pain “person” dr. I should have taken someone with me to have my voice heard and that was a lesson learned. The procedure was tolerable but aggravated my TN and sent me into a huge flare up and ended up in the ER with the shocks stabbing pain burning …everything I was hoping to calm down.
I see your post was the 16th of December but wanted to share. Please let me know your outcome. It’s nice to converse with people who understand the hell we live with. Hugs to you and hope you are well
Kristi