I have to share my news with the ppl that know the pain im going through.Told my family but it didnt seem like a big deal to them.Since i increased my Gabapentin 2 days ago i FINALLY can say im pain FREE today.havent been able to say this in a long time.Im hoping this is the beginning and not just a tease…Hope u all are having a pain free day!!
Awesome! How much are you taking…I am on the same thing and it definetly helps, but I don’t think my dose is high enough. I am very very happy for you - and it’s great to hear the good news!
Well the good news lasted a day…Woke up ok this morning and that stupid pain started again…Grrrrr but on a brighter side i can say i had one good day i guess…Katie right now im only taking 900 mg a day.Hmmmm do u have any side affects…WOuld like to know if we share them same affects…
Hi Marina,
Sorry it is back. Maybe you can increase the dose again. You may just not be on the optimum dose. I take 3600 mg. So it can be increased.
Liz
Sorry the pain is back, the neurontin can be increased to 3600mg/day. when i was on this dose i felt impaired but pain was better managed. the dose worked for about 4-6mth then came back. boy no easy answers. remember your not alone - - i find less alone myself when i read and connect with other tn patients. let me know how your doing. regards maureen
marina said:
Well the good news lasted a day…Woke up ok this morning and that stupid pain started again…Grrrrr but on a brighter side i can say i had one good day i guess…Katie right now im only taking 900 mg a day.Hmmmm do u have any side affects…WOuld like to know if we share them same affects…
Marina, I think I have a little memory loss from the 1200 mg I am on, but it isn’t too bad. I tried topamax and that made me a vegetable. I am pregnant right now so they won’t increase my dose until i have the baby. I am curious to see what dosage I will be able to handle. But I did realize that 900 did not work for me. Hopefully you can find relief in increasing your dosage without too many side effects. Best of luck!!
Im scared to increased my meds.Im a working mom and find when i take the meds they make me sleepy.Hard when im at work cuz im a nurse working with the elderly.Im hoping and praying that this nasty TN dont take my job away.God its fustrating…
Katie said:
Marina, I think I have a little memory loss from the 1200 mg I am on, but it isn’t too bad. I tried topamax and that made me a vegetable. I am pregnant right now so they won’t increase my dose until i have the baby. I am curious to see what dosage I will be able to handle. But I did realize that 900 did not work for me. Hopefully you can find relief in increasing your dosage without too many side effects. Best of luck!!
How do u feel with 3600 mgs…Are u sleepy alot…Thats what im scared off.Being sleepy and trying to live a normal life.But i guess TN dont allow us to live normal…
Liz K. said:
Hi Marina,
Sorry it is back. Maybe you can increase the dose again. You may just not be on the optimum dose. I take 3600 mg. So it can be increased.
Liz
Marina,
I am sleepy but I believe it is from the trileptal and not the neurontin. I didn’t get sleepy until after I started the trileptal.
And maybe you will be able to find the right combination of drugs that allow you to live a normal life.
Liz
Hi Marina, hope all is well and pain is too bad. my side effects from neurontin were sedation/slowed thinking/yawning+++/sleepy+++/feeling stoned/slowed response times to communicate or move
- hope you are ok on the meds
maureen mccart said:
Sorry the pain is back, the neurontin can be increased to 3600mg/day. when i was on this dose i felt impaired but pain was better managed. the dose worked for about 4-6mth then came back. boy no easy answers. remember your not alone - - i find less alone myself when i read and connect with other tn patients. let me know how your doing. regards maureen
marina said:Well the good news lasted a day…Woke up ok this morning and that stupid pain started again…Grrrrr but on a brighter side i can say i had one good day i guess…Katie right now im only taking 900 mg a day.Hmmmm do u have any side affects…WOuld like to know if we share them same affects…
HI Marina
Glad to hear about your pain free day, I am having one also, or should I said so far so good, yesterday I went to my pain management Doctor and now he upped my Dilantin and is also having me take Lyrica…the Lyrica were samples I told him the insurance company wouldn’t pay for them for a months supply they come to $245.00 I will have to find another insurance company, hopefully someone will pay for them…sorry I rattled on, I am glad you are doing ok…word of advice don’t over do…because generally when I feel good I tried and tackle all the jobs I let go, and then I am sorry later…Take Care Marcy
I’m so happy for you Marina:)
I take 1200mg a day of tegretol and 300mg a night of neurotrin. I am ok most days but worse in the afternoon. Talking bothers me, chopping veggies, wind, etc. I take neurotrin at night for my legs and back. They recently switched me to gababentin the generic brand and I found it does not work as good. They are switching me back thank god. The tegretol does make me forget things and a little sleepy. I don’t drive. I do my best a work. It is hard. I wish we could all wake up one day feeling ourselves again. One can dream!