Tonight I am laying awake with nightmares after all the pain meds. I am praying god takes me. Our lives are getting overtaken by pain and I wish and pray for it to all end. I hope that my lives lessons are done. Please include me in your prayers. Thank you x
Is there somebody with you…near you?
I know that feeling well however, please please know that so many people need you. I am encouraged that you mentioned God, please pray and meditate on Him. I am so so so sorry you are feeling this way. PLEASE call your doctor NOW.
Can you go to the ER…?
((( Helen ))), I will pray that you get a much needed break from the pain.
I know how exhausting the pain can be, not just physically but mentally and emotionally as well. It certainly takes a toll.
It’s moments like these when our strength and courage are truly tested…please reach out to someone for a shoulder to cry on or vent too.
I’m sending you positive thoughts & vibes and praying you’re able to find relief soon.
(( hugs )) Mimi
Oh, I'm overwhelmed. I know the toll this takes but don't give up. There are better days to come. You'll get through this horrible night and write to us. You have an army of people who are here for you. Who know and understand. If you keep searching you will find something to get your life back. I've never seen support like this. If you have no-one with you now be here.
Thank u. I am still here! Zonked out and over slept. I am up feeding the dog, ironing, cleaning bla, bla!!! I’m OK.thank u, thank u, thank u xxx
Oh Good.That hole you were in is dark.Been there.But it always gets brighter,better.
Helen, please feel free to PM me and vent anytime you wish. I know things may look bad, but many of us, including me,want you to go on and maybe find relief.
Hi Helen, I feel for you so much, I have felt like that at times, but I am a woman of 71 and you are a young person, and it does not seem fair for all you young people to have so much pain, theres not enough research into TN a lot more should be done, anyway Helen try and keep strong we are all with you, I will keep you in my prayers, and light a candle for you in my local church to-day. xx
I went to pick up my daughter today and a lady who knows I suffer with tn. She brought a newspaper article from the weekend for me and said she would help me get a second opinion if I needed her. How kind are some people. Thank u everyone for all your kind words and prayers I’ve needed it today. Xxx
You are in my prayers and we all have had those really dark moments, sometimes it just gets too much. Hoping today is better for you and how nice of the lady to offer to help, sometimes we all need a shoulder and help! On my better days I wonder why I get so down, I think I will beat this, I won't stop living, but there are those bad days that giving up feels like an option, but I just try and remind myself each day is a new one and hope for the best and keep on. Concentrate on the love with your daughter and your dog :) Even though I get worn out, being the caretaker of my disabled hubby also keeps me focused that tn or not, I am loved and needed. My dogs and cats always help me to feel the love and feel better emotionally. We all are here and care. Gentle hugs,
Betsy
Helen, I've prayed that prayer or some variations a few times myself. In fact, I'm praying for you right now -- even as I type. I don't know what I could say to make you feel better or the pain less, but I came to this site today to start a discussion about my latest disappointment, then saw your thread and was glad that you were so openly honest about the horrors you must face. Hang in there! We're all pulling for you and, at least, understand some of the heartache and alienation this malady can create.
Thank u Betsy and henry. I am mum to 2 lovely little girls and we have gorgeous licky dog rags. My girls live 50% with my ex husband last night was my 3rd night without the girls. I’d never take myself away from them but I get desperate with this condition. Much love x
Helen, just read your post of the 29th, and my heart goes out to you. Please let all around you know how desperate the pain can be and ask for help and support in any kind of way. This site is wonderful and we are all praying for you but you also need someone in the physical world as well.
And as your red in my MVD success posts, there can be relief. There is always something better to help us.
Keep Heart
Bellalarke
Thank u Bella x
Oh Helen, I am so sorry. Praying you find relief. Hugs
Another tough one. I’m so glad we have this site. Thank u patty xx
hi helen, i have been where you are and said those same prayers to God. im still here 3 years later and i have changed my prayers. i pray that you can fight your way through to a better place and that you get some relief from your pain.
Thank u Jacki x