Right Sided TN in all three branches.Anyone had symptoms in other side?

Hi Everyone,

Sorry i am not around much. So busy with my maternity and baby photography. Also doing a wedding at Gold Coast next weekend. Australia Day.

I have TN in all three branches on rightside. But the last couple of months i am getting same kind of pain on left side of lower jaw? Just it comes and goes very quickly. But its just the same kind of pain that i have on right side just way shorter in time.

Does this happen over time. Do we get into to go to the other side of our head?

Also lately on my bad side (what I call it) my tongue gets pins and needles. Just on right side of tongue. The other day it went numb. So laid down on affected side just in case. Is this common. i swear you can put a rule in the center of my head and everything of right side now is affected. Nose,eye,ear and both jaws. Forehead and back of head.

Love to hear what you think?

My bad side is my left side...pain all over. I have started experiencing similar pains on the right side, but not near as painful as the left side. I have also experienced what felt like sores on the left side of my tongue, but when I looked there was nothing there. I'm fairly new to all of this so I have no idea what is common and what isn't. Hope you have a great day!

Thanks for your reply. Never ending hey. But i try to keep busy with my photography. But sometimes I just have to postpone for a week when extreme. Nothing seems to work when its over a eight out of ten.

Have a lovely weekend.

Chris

I have bi-lateral atypical TN. my right side is the one that has been affected for years, started having pains on the left in early November. I had a high resolution MRI that showed compression of the nerve on both the left and the right. Since the right is worse, I am having MVD on that side on the 25. I will have to wait and see about the left.
Hope you are feeling better soon

My pain is right sided on all three , my tounge goes pins and needles/numb regularly its the precursor to the pains in my head. I have recently getting pains on left forehead but hoping thats just tension headaches .

Someone suggested hot peppers before for that feeling of pins and needles. I got it before on the middle of my tongue for awhile. I got sooo frustrated one day I ate some hot pickles. I told my husband I was going to give my tongue something to be in pain about!!!! I figured at the very least I would confuse the nerve endings.... LOL Well it didn't like it too much.. But I did it again the next day.. and it went away. So I don't know if it actually worked OR if it was a coincidence. But , I hope I don't have to find out again...

Hmmm think I may have to try hot peppers , thought the acupuncture was working till I had an attack on sunday x

I have bilateral TN.
Right side type 1 lower branch.
( ten years ago my right side only had upper branch, right under my eye)

Left side started out more type 2 also lower branch, but since November I’ve been experiencing type 1 electric shocks as well, no triggers that I can figure out.

My tongue is also a new thing for me, just along left side of tongue, hard to describe the sensation, but Popsicles actually make it feel better…

Mimi

Thanks everyone for sharing your story:)

I wonder how many of us have significant amounts of stress in our life??