Oh gee. I haven't been on the site. It has been hard to have a "chin up!" as the Brit's say. Oh, who cares what type of TN, it is all atypical in my opinion. Humor is my savior. Moving on...well the pain and numbness are worse after the procedure. Too scared to do MVD as the risk of stroke is a real is not a happy thought and the odds are not super. Strong family history.
Let's talk about medication management to symptoms. Currently taking Trileptal (tegretol variant) 1500 daily, topamax 75mg daily, valium 10mg 2x daily for the spasms and Ultram 50 mg 2x daily as needed. Am I really taking all of that? And I still have break through pain. Hmm... what next? Suggestions? Comments? Help.