My pain has been getting worse for the last two months... I had an MVD on april 24th and I had a feeding from june 2011-june 2012. finally the pain decreased enough for me to eat by mouth. Ever since the pain started to increase, it never stays at the same pain level. I'm sooo frustrated. I can't drink, take my pills or eat anything. If it's a decent day, i can drink one spoonful of water/Gatorade. I'm so dehydrated that every time I move, my muscles keep spasming.... I know what's going to happen is that we will have to go back to the ER. I actually want to go back so they can give me pain meds and re-hydrate me.... I can't do this anymore. anyone have ideas to help me eat? My mom's fighting with me to try and keep the tube out... I've been trying for soo long to keep it out and i actually want them to put it back in because i'm in soo much pain that i don't wanna do anything.
((( Christine ))), I’ve never been in your situation so I can’t advise you or give you tips.
However, in my opinion, I would think getting adequate nutrition/hydration AND pain control should be the priority. You know your body best and to what limits you can push…go with your gut, theres no heroics in suffering, it wears you down and depletes what little energy you have.
Please take care of you, sending positive thoughts and lots of (((hugs))), Mimi
Christine, whatever you choose, please choose it quickly. Really your medical caregivers should be aiming to reduce your pain so that eating and drinking is possible. It's all a vicious circle. Taking the strong TN meds without fluids can also be problematic and is not to be recommended. Please tell someone to help you immediately.
Christine,
I am sending you only positive thoughts so that you will be better soon. Please please get some help it saddens me to hear about your condition. I am only hoping that maybe this will be a turning point for you to get better. I am also wondering if I should have the MVD procedure done. It will be a critical decision for me.
O how I could just be there to give you a hug and keep up your spirits!
Big Big ((hugs)) coming at you. Take care of yourself.
Monica
Hi Christine, I am so sorry that you are in so much pain. Eating , talking and drinking can trigger the pain and you will try to avoid doing just that. However , we need energy to win this battle . I gulp down milk and fruit juices quickly to stay alive. You will come out stronger . Have faiths that you will be okay one day. Please take care if yourself. ((Hugs))