Hi everyone. I had an MVD surgery 9 weeks ago. My NS did find a vessel pushing against my Trigeminal nerve, so after placing the pad there and going 2 weeks pain free I then began to have my TN attacks again. I have already seen a new surgeon who is going to do GAMMA knife on me now. (hopefully that will work)
HOWEVER.. for the last 4 days I have had a HORRIFIC CONSTANT TN episode that had made me more miserable then the MVD surgery made me feel.. I can't keep food down, I can't stand even the slightest sound, the inkling of light, or even the slightest gust of wind. I'm so miserable!!! *cries* I feel horrible for putting my family (husband and 5 year old son) through this again. I need to know if there is anything, besides Dilantin/ phenytoin, that they could give me at the ER to help me. I have developed a pretty nasty allergy to the Dilantin. unfortunately!! ( it was all that gave me relief) Pain meds would be great only they don't take the pain away this just kind of make me not care for a little while.. lol. Any suggestions? Please help me ASAP..
Just go! My Neuro said he would have them give me iv anti seizure of another kind to get it under control. Even pain meds could knock you out and sleep might help. If it were me I would just call my doc so he could call ER and go.
It sounds to me like you need to go on in to the ER. You do not need to suffer through all of this without medical help and you need to get some relief. I seriously would go on to the hospital. Don't worry about putting anyone thru anything...they love you and just want you to feel better. Wish I had better advice to give you. Take care and hang in there.
Hi PrincessParsons. I understand your pain. I'm really sorry and I hope they'll find something to help you. The only thing that helps me is Oxycontin. It's not like of "make me not care" ... It really diminishes the pain. In my case.
I feel your pain. Tears well up in my eyes as I read your post. I too had MVD and then Gamma Knife. I have to beautiful grown girls and a wonderful husband and I can tell you first hand, when I apologize and withdraw they worry more. They have all said that they just want me well. I'm sure that your family feels the same. Call your doctor, tell him you are on the way to the ER! There are so many drugs out there, keep trying until something helps!!!