thanks for the invite i was trying to tidy myself up yesterday after 4 days of wearing my pj so i had a shower and done my hair was inposible to put make up on my face cos i got the pain and it just rolled down my face so ive just come to the conclusion that i will just stay the way iam
Lorraine, you dont need make up to look good. glad to hear you were able to have a shower and get dressed. have you been able to get out of the house and take a walk, or has the weather been too bad?
we have had storms here today, but the sun has just shone through, i am laying here in bed at 3.00 in the afternoon, i went back to bed at 1.00pm. so i think i am going to make myself get up and try to make the most of the remainder of the day
lots of hugs xxx
Thank you for that Lorraine, we all have days like this. In my case I can say when I do have that shower and change it does make a difference to the way I feel. Make up can be difficult with the Face Pain I know and empathize on that one. I do wear it whenever I can bear it. I use mineral foundation now, as it can be applied with a soft brush I find it kinder to my face and less of a trigger. If I have that awful pain in my lip I miss wearing my lippie though.....
Yes, quality makeup matters. I went to using MAC makeup that I put on with a very soft foundation brush. I also do not wear everyday... but it's not the putting on makeup that hurts for me... it's taking the stuff off. I dread that more. I also agree that showering does make one feel immensely better.
thank you for all the friendly advise i do try and go for a walk with my husband and granson the wind is gone very bad now so wont be going tomorrow iam going back to work on firday after xmas hoildays hope it will be ok as i work in a private school as a cleaner and have to make 3hundreds beds just praying i will be pain free that day thanks xx
300 beds! thats quite a workout! It saves having to go to a gym! Hope the first day back goes well xx
I take my hat off to anybody that makes 300 beds in a day. To do that with your pain is colossal. Quite mind blowing. I don’t think I could even think about make up etc with all that to do!
I too live in my pajamas. Lounge pants and a t-shirt.
I should have listened when Elizabeth Taylor said "beware of the elastic waistband." lol
it wont be on my own when i make them beds there be 7 of us
phew I am pleased to read that Lorraine!!! And Crystal nothing wrong with Lounge pants, think of them as your house uniform, I do!
I have learned to just kick off the clothes and get comfy, it's just my husband and myself. He calls it my frump look, with a smile on his face. He is just happy when i come home and not alot of pain...he has been so great. He makes my life stress free and i love him for that...he is not demanding and if all i have for dinner is sandwiches , he is okay with that....
Bet, i also love my comfy baggy pants, not sure my husband does! Good Luck with the MVD on Friday, I will be thinking of you and waiting to hear from you once it is all over. Your husband sounds lovely and i am sure he will be taking good care of you xxx
LOL on the Elizabeth Taylor quote. No elastic but all my pants tie with a string, does that count? Put Jeans on over them if I have to. I can be quite a site sometimes, I look pretty silly in my fur coat, rubber knee high boots, jogging pants that never go jogging and a fleese hoody. But strangers walk up and ask to pet me, gotta love that!
Ok, some may not believe me when I say this & I am a bit hesitant for adding my comments. Pls keep in mind that I understand everyone is different. But, I have a completely different way of dealing with the horrid pain. Over the 20 yrs that I've suffered, & believe me the pain is excruciating as u all know, I have found that soon after I get up it's into the shower & it helps relieve some of the pain. Of course, the water hitting my face is a no no. Just getting up & moving is the best help I've learned. If I sit too long the pain is worse. I try to stay very active during the day. If u had asked me that 20 yrs ago I would have said that's crazy. So, now after this length of time my pain has progressed to what I consider spasms that can last as long as 40 minutes. During those times I walk or go up & dn steps in my house. Since it's very cold where I live it used to be very painful to be outside or for that matter even under an indoor fan but I learned kind of by accident that if you keep walking it stops & is much better for a longer length of time! I found out by accident that even riding a bike when it's chilly out will hurt at first but after a few blocks....hey, what happened! The pain stopped!!! So, no sitting around for me and believe me the disease has progressed in my case over the years. It's the only thing that keeps it somewhat under control. Maybe, some of u think I'm nuts or u may be angry with me but like I mentioned, it's just what I've learned. As far as putting on makeup I got so angry one day that I applied makeup on with a very hard touch and there again it wasn't as painful as trying to be so delicate & afraid to touch. I still get angry every year which makes me a little stronger as each year passes. I tell myself I can be tough & try to talk to it in my mind to be tougher than the pain. It works for me. Hugs to all!!!!
hello every one iam very sorry if i ofended every one on here about the way i tried to tidy my self up i feel like a fool now making that discussion so i hope every has a lovely new year and a pain free one because i hope i do thanks lots of love lorraine xxxxx
Please don't feel offended, Lorraine. We all understand what u were going through. I think u r very brave & hope u get some relief soon!!
Blessings to you & Happy New Year, too!
Lorraine it was a good subject that is why so many of us replied.
Sandra, its a very interesting comment to make. I was on a cycling holiday when TN first attacked. I didnt know what it was. I kept getting back on my bike and off my bike and had attacks in between. The attacks only happened when I stopped cycling! I have tried to work out why? Looking back I thought my cycling was the trigger but maybe cycling was a help? On the final day of the holiday, driving home, I had background pain all the time, i guess that was because i had nothing to take my mind off it.
I must admit though, I am still to scared to cycle in case it sets it off again, maybe in the summer on a rare warm day when there is no wind, I will try it again as i love cycling
I have no idea why you thought you would offend someone Lorraine. just look at all the answers! that's more than the average discussion, people are loving sharing and caring here. It was a great idea!
lorraine said:
hello every one iam very sorry if i ofended every one on here about the way i tried to tidy my self up i feel like a fool now making that discussion so i hope every has a lovely new year and a pain free one because i hope i do thanks lots of love lorraine xxxxx
hi every one was just feeling a bit low yesterday ive got loads of clothes in my wardrope which i cant fit into any more that ive put so mush weight on 3 stone in fact and its not from eating cos i dont do a lot of that unless its from a straw or teaspoon so it must be the amount of tablets iam taken 3 thousand 600 mg gabapentine a day plus tramadol its a wonder iam auctuly able to atand stright well any way its a nice day here so iam getting my boots on and going for a long walk in the woods with my husband thanks every one xx
Lorraine, I have put on quite a bit of weight, too. I think because I am so inactive, though I try to go walking when I can. The woods sound lovely, but we really don't have a nice place to walk around here. Or sidewalks. Maybe I need to get out some exercise DVDs? But not today. Today is a "self nurturing day" for me. My eyes really hurt. I hope you get that walk, and I hope it is lovely. And, you know what? Some days just managing a shower or to get out of bed is a major coup.