One year ago, I thought my life was over. The pain of TN, the fear, the confusion and the anger was overwhelming. I was one of the fortunate ones to be accurately diagnosed only three weeks after symptoms began. After failure with most of the recommended drugs, I had Gamma Knife Radiosurgery five months later.
My first three weeks I thought wow, I am normal again. But then again I thought my life was over. The pain returned with a vengence. It was worse than it ever was before. I couldn't help but think maybe if I hadn't of had gamma I would be better off. I loved and trusted my neurosurgeon and his team so much that I did everything in m power to remain postive and patient. I thought if I heard "you are transistioning", one more time I would scream! But you know what, after two months on the highest dosages of meds that I had ever had the pain began to stop. It is now six months later and apparently I have fully transistioned. I am left with nerve damage that produces spider like sensations and some burning but none of the severe pain that I experienced before. I have to be careful with wind, vibrations and sudden temperature changes but I feel normal again. I am still on a moderate dose of meds but it is no comparison to before.
I guess my advise would be if you have had treatment, be patient and allow your body to accept it. If you have not had treatment investigate all possibilities and find a good doctor that will help you decide what you should do. We have no guaratees but each person is different and will respond in different ways. Take the chance. Trust you doctor and most of all trust God. We all deserve healing and I pray that it comes for each of you.
God Bless!
Sharon