I have had several doctors tell me I need to move to a different climate to help manage my pain. Has anyone run across this? Have you moved to another climate and had success? My husband is very established in his job here and can promote easily here. He is willing to transfer to anywhere and give up that opportunity just to see my pain reduced. Before we uproot, I would like to know if anyone has had success with this. Right now I am willing to try about anything.
Hi Dana,
I haven’t lived in different climates, but I’ve spent time in different climates and have never noticed a difference in my pain or frequency etc
I’d be interested in hearing of others’ experiences…
It’s a big decision. Good luck, Mimi
You need to decide what your triggers are. Wind? Cold? Humidity? Changing climate?
I suppose do a google search, to see where the least windy, or most steady climate, and weather.
Its worth is to at least look around, and see where these places might be.
Hi Dana. I’ve wondered as well. That is a huge decision. I’m planning on spending a little time in hot and dry Arizona soon to see if it eases my pain.
Good luck to you. Sounds like you have a wonderfully supportive husband.
Hope
I have heard that warm wether help with th but warm weather is usually windy too so not sure about that
Last year during the winter I had a 3 week vacation in a hot dry climate, my pain was almost nonexistent during that time. I am not sure if it was the change in weather/climate or maybe I was just very relaxed, sleeping late and just wandering around as it suited etc.
I live close to all my family and would not want to move away from my support system, it is a big decision. Currently my pain is fairly well controlled with medication, I may feel differently if I was struggling to get any relief.
I have a cousin that moved to a warmer climate to help his chronic bronchitis and he said it was the best thing he had done for his health.
Good luck
Hugs
Trish
I also understand why no one would want to move and leave their support system and or family, saying that, I have not been very many places out of my home state of mi. but given the opportunity I would love to beable to at least see if it would make any diffrerence, the chances of getting to try are slim to none.I had to stop working in 2003 because my tn was so bad and my meds made me loopy,so it was too hard to be a nannye and housekeeper and to take care of animals all day most everyday so now I live on 700 dollars a month I am sure many know just what I 'm talking about. I would love to try a few different kinds of thing because I have atypical tn with the shocks, burning, boring, throbbing pain, also migrains and its all on the right side of my head and the right ear and back of my head. I also have the vice grip pain still and now bone pain from a failed mvd. I had a GREAT surgeon. Dr. Casey!! I am now like so many at my wits end. I quit the bacelofen I am still on lycria and tagretol seeing no let up to this pain. my daughter I think is sick of dealing with this my mom is 86 and not in good health I guess what I 'm saying is I have very little. support. my new Fd. the way he grinned at me when I just asked him what was his honest opinion about tn,he asked me was I seeing a psychologist? when I said yes, he just told me to keep going. As soon as my old fp. office I will find someone that will see me right away as in now. I do know that klonapin will help me more then anything I can think at least untill I can get into the pain clinic and I don't. even have an app. yet my awesome nurse said it shouldn't take to long. I am just so ready to call it quits I have lost 40 pds. in 3 months I can't eat or sleep I have no life it never stops. Other then my mom, nobody wants to be around me I cant. hardly blame them but I do want to thank everyone here for their support ..
Hi Dana,
This is a huge decision to say the least, especially if you have a close-knit support group which is essential with this severe condition.
How you decide what is best is really difficult. During the twenty years I have had my TN, I have moved, lived & worked in several different areas. Hot and dry or warm, humid and wet or cold and damp. My pain continued without any ease in severity.
The problem is that with hot or warm temps comes air-conditioning or fans which can cause havoc with your TN. Winters are also really bad for me, even in warm climates, the only good thing is the cold spells don't last long.
Personally, I could not manage without my support group. When the pain is really bad, there is always someone closeby I can call or someone who will come around to visit. This aspect will be a tough decision to make. But, you can always look forward to making new friends elsewhere.
Good luck with making your decision.
Blessings,
CH.
I'm sure it's extensive
can you post a list of all the meds you have tried???
I may have a list of some that you have not tried to get relief with yet.
Dawn Monarch said:
I also understand why no one would want to move and leave their support system and or family, saying that, I have not been very many places out of my home state of mi. but given the opportunity I would love to beable to at least see if it would make any diffrerence, the chances of getting to try are slim to none.I had to stop working in 2003 because my tn was so bad and my meds made me loopy,so it was too hard to be a nannye and housekeeper and to take care of animals all day most everyday so now I live on 700 dollars a month I am sure many know just what I 'm talking about. I would love to try a few different kinds of thing because I have atypical tn with the shocks, burning, boring, throbbing pain, also migrains and its all on the right side of my head and the right ear and back of my head. I also have the vice grip pain still and now bone pain from a failed mvd. I had a GREAT surgeon. Dr. Casey!! I am now like so many at my wits end. I quit the bacelofen I am still on lycria and tagretol seeing no let up to this pain. my daughter I think is sick of dealing with this my mom is 86 and not in good health I guess what I 'm saying is I have very little. support. my new Fd. the way he grinned at me when I just asked him what was his honest opinion about tn,he asked me was I seeing a psychologist? when I said yes, he just told me to keep going. As soon as my old fp. office I will find someone that will see me right away as in now. I do know that klonapin will help me more then anything I can think at least untill I can get into the pain clinic and I don't. even have an app. yet my awesome nurse said it shouldn't take to long. I am just so ready to call it quits I have lost 40 pds. in 3 months I can't eat or sleep I have no life it never stops. Other then my mom, nobody wants to be around me I cant. hardly blame them but I do want to thank everyone here for their support ..
I also have Trauma induced neuropathy. I have tried a few different climates on vacation, but honestly can say location has not made a huge difference. Overall-,Mild to warm temperatures with high barometric pressure (I.e no storms) seems to help a little regardless of location. Tough to find a place with permanent weather like that let alone justify a move for such mild improvement.
My only suggestion if you can afford both the time and money, Is to try and vacation somewhere and see if it makes any difference. In reality nowhere in the eastern states will have much different weather than Virginia. From Maine to Ohio to Florida, all have humid climates and frequent storms. Only real difference is temperature. A place like Arizona or Southern California probably have the most stable weather, outside of Hawaii of course....
I live on a small island, so my perspective on moving wouldn't quite be the same. However temperatures and climates vary greatly in different parts of the country. I used to live in a warm dry area and last year in March I moved to my new address in the coldest, wettest, rainiest part of the island... In July I got really sick because of the cold and had my first TN pains.. By November I was living absolute hell. Cold is a trigger for me and I am convinced that if I had not moved, I would never have been sick in the first place. I'm looking to move again right now. In your case though, it's a much bigger decision. Is there any chance for you to spend some time in a different climate and see what happens first? (Come to Mauritius and stay on the coast!)
I do run into the problem of a/c affecting it and sweat rolling down my face and cold and wind and storms and the list of triggers go on and on. I have been looking at the reports regarding stable weather and we are seriously looking at Arizona. Hawaii and California are not options. Thanks for the input everyone.
Cold and stormy weather has always been the worst for me. I have gone on vacation to a fairly good amount of places to see how I would feel elsewhere. The place where I felt the best was in Costa Rica, in a town on the Pacific Ocean that is a dessert. There was no wind, rain or humidity. It was great. I don’t think it would have been a cure to move there (since then I have had MVD surgery and the compressions have been fixed and my pain is nearly gone) but I do believe there might have been a difference in the severity of the pain. But I also don’t know if other factors such as the fresh food, less pollution, less stress from every day life, etc., made me feel better also.