I am curious, has anyone found that a certain climate makes their TN more tolerable? I live in West Virginia in the US. Recently it has been between 20F and 40F with icy winds and many weather systems moving through constantly. I am basically having to wrap my head in a hooded scarf every time I go outside in order to keep the chilly breeze from feeling like tiny razors on my cheek. During the summer here it is very humid. The storms of the previous summer here left me tingly and aching much of the time as well. Seems WV is not good for my TN.
Generally i live in north western australia always warm and i just took a holiday in very cold victoria a cold wind sent me in to an evil pain first time had that experience feels to me like the cold sets this devil right off
I dont have any triggers but I have 24/7 pain
I live in Tennessee, but we have been having cold weather too. We have very hot and humid summers too.
A large plastic bubble that is kept at a very perfect tempature of 78 degrees and no breeze? Just kidding. I think every climate is going to have its perks and minuses with TN. I live in one of the states of endless rain fall, and boy do rain drops feel like bullets at zillion miles per hours. Even with that I love the Pacific North Westeren states. There is other places in the US I would rather live in. The key is learning to adpate to the changes in weather and finding ways to avoid triggers. If I had it my way I’d live some where even colder in the winter so it would snow. Just for the fact I love the snow. Yes I know most of us hate the cold but I just love the
Snow.
I use scarfs, bumpber shoots, a really big hoodie, and stay inside a lot because of the rain. In the summer I just try to stay as cool as possible and only go outside when its bit very breezy or windy out.
jstagrl29, I would say that for the past couple months I have had 24/7 discomfort. That stated…cold wind, sleet, snowflakes seem to feel like little cuts. Also (of the non-weather variety) overwhelming din, fluorescent lighting, driving towards those flickery Plasma headlights, and tinny sharp sounds can trigger sudden burst of pain along with a spike in the persistent headache that I have as companion to my TN2. Lastly, my neurologist feels that I have somehow lost the filter that allows me to drown out or ignore sounds with my right ear that I don’t need to hear (overwhelming din). If I am in a room of 20 people I hear 20 individuals speaking rather than just noise. Gets quite overwhelming… and painful.
I do feel like someone is cutting me with a razor on my forehead and right along my scalp its awful…whats ur headache like? mine was persistant and awful actualy have one now and laying on ice the only thing that kept mine away for days and days was chiropractic I havnt been in Weeks though
Kari, I have a hoodie scarf that I have been wearing nearly everywhere recently. Posted a pic in the TN fashion group. Before that, it was coats/sweaters/shirts with oversized hoods. Trying to adapt. Fear I am not doing so well with it. Hard to keep my life in order. My career was triggering pain daily. Left it for a small online business that I started, but it is nowhere near the income I had before. Find that I sleep more these days since Winter has arrived, don’t notice my TN when I sleep thankfully.
jstagrl29, my headache has been constant this round since the 4th of November or so. Constant ache on the right side, with occasional exacerbations. Gets worse in intensity when my TN flairs or when under fluorescent light for any given time. Was a teacher when all this started, fluorescent lights everywhere and little natural light = constant pain. Had to leave it. Was heartbreaking to give up my passion.
Im currently not working right now either I miss it I miss everything
I live up in the Seattle area and I most definitely feel better in the warm, dry summer than I do in the wet, cold winter months. I've lived in this climate for 10 years and it's the same exact cycle every year. I'm a firm believer that climate (barometric pressure) is a key trigger for me.
agree with hamster ball like bubble, sounds good :P
Kari said:
A large plastic bubble that is kept at a very perfect tempature of 78 degrees and no breeze? Just kidding. I think every climate is going to have its perks and minuses with TN. I live in one of the states of endless rain fall, and boy do rain drops feel like bullets at zillion miles per hours. Even with that I love the Pacific North Westeren states. There is other places in the US I would rather live in. The key is learning to adpate to the changes in weather and finding ways to avoid triggers. If I had it my way I'd live some where even colder in the winter so it would snow. Just for the fact I love the snow. Yes I know most of us hate the cold but I just love the
Snow.
I use scarfs, bumpber shoots, a really big hoodie, and stay inside a lot because of the rain. In the summer I just try to stay as cool as possible and only go outside when its bit very breezy or windy out.
I find that the spring and fall are my worst times. I can almost guarantee I will have very painful bouts in March or April and October or November. And the fall with the colder breezes is worse. For me, I think an area with a fairly constant, warmer climate would be ideal. I live in Tennessee but maybe further south where it doesn’t get as cold would be better for me. Or maybe a beautiful caribbean island. Ha!
I live in VA and the fall is awful for me!! In the winter, as long as I don't go anywhere I am okay! Also , I have trouble with elevation changes. We live in the foothills of the Blue Ridge Mountains and if we go up the mountains, I have an awful time. Once I get in a certain elevation and stay there for a while I am okay. It is bad then coming down to a lower elevation.
I am your neighbor to the NW Karen. I can relate.
We are right on the eastern edge of the central lowlands of West Virginia. All of the weather barrels across the state from Ohio and Kentucky and then Screeches to a squishing halt just to our east as it gets compressed by the Appalachians. Though the normal skull might not notice, the crashing high and low pressures wreak havoc on my nerve pain.
I live in Michigan. I have tried Florida, Jamaica, Mexico, Kentucky, North Carolina. Ocean breezes and high humidity were no help. I was able to do 5 weeks in Mesa AZ October and November this year avoiding the wet windy Michigan fall. It only rained on my first and last day there. Otherwise it was dry and hot. For me it brought the Type 2 ache from an 8 average to a 5. I was able to be outside and go on hikes with my husband and did not need a hat or a scarf. I plan on going back again in the spring for another month.
I have thought of warm, arid places as possible havens…it would just be so much for them to undertake for us to uproot and go. I feel so much guilt (self-inflicted mostly) for the position my TN2 puts then in anyhow. I find that my busy mind, often my greatest asset yet worst enemy, falls to thoughts such these during times of heightened TN2 and headache activity.
Ah I’m sure your adapting better than you give your self credit. Also I just remember something that most people don’t think on too. In warmer climates your body adaptes to these climates in particular your blood will thin to help cool you body. So in the cooler months it is cold to you. When I lived in southern CA I thought it was freezing out at 60 degrees. Also warmer climates such as Southern CA, Arizona, Las Vegas are basically deserts these places can be espsceially cold and have some nasty weather. Not only is there is cold but you have to think about the hot times. I will never forget the day it was 120 outside by 11am. I was even sick at the time with tn and it was miserable. I can’t even imagine if I did had tn back then and had to go through that kind of heat. Also I do have friend who has a chronic illness and left oregon for Las Vegas think the dry heat would be better for her fibro. She has a really hard time in the winter and summer because or the heat and cold. It’s only the spring and fall that she finds relief, just like here in oregon. So really every climate has its good and bad. I still day the human size hamster ball at a perfect 78 degrees with no breaze is the best. Okay sorry for the rambling. I hope your having a great day that is pain free.
aCuppaCoffee said:
Kari, I have a hoodie scarf that I have been wearing nearly everywhere recently. Posted a pic in the TN fashion group. Before that, it was coats/sweaters/shirts with oversized hoods. Trying to adapt. Fear I am not doing so well with it. Hard to keep my life in order. My career was triggering pain daily. Left it for a small online business that I started, but it is nowhere near the income I had before. Find that I sleep more these days since Winter has arrived, don't notice my TN when I sleep thankfully.
Yes, I think weather may matter. I am planning to move to the Gulf coast of Florida from NY. My primary goal is to avoid the cold. That is my fantasy and hopefully I can avoid AC as much as possible. Not a problem for me as I am very heat tolerant but I realize I can't always control the environment of others, but at least I can be more comfortable outside.
Christine