Hello all. I have TN on the right side of my face. When I am having a flare up that side of my face feels very inflamed and swollen. My husband says that he can tell that it looks a little swollen but nothing like what I feel like it should look. It is no where near as painful as the shocks but the swollen feeling is still quite uncomfortable. I am just wondering if anyone else has experienced this. Thanks and I wish for all of you to have pain free days ahead!
I had this just last night. I went to look in the mirror and even I could see the left side of my face was swollen. It’s super painful and uncomfortable. You are definitely not alone. You have at least one fellow sufferer!
Mine gets this tight feeling, then I will have tingly/burning sensations. My ear has actually gotten really red before. But like you said, it's just uncomfortable.........nothing like the shocks or stabs! However, if I had my choice for the BAD pains, I pick the shocks because I learned how to breathe through those. The stabs are TERRIBLE and you can't even breathe through them!
Yes, slight swelling on bad side,even my neurologist noted it on my first visit to her. Ear turns beet red, and when it’s really bad, a bright spot on my cheek.
Yes! My ear turns so red! And then sometimes my cheek. When my cheek is at its worst people think I need to go to the hospital. I can take that over the boring pain in the corner of my nose/eye like a horrible migraine. That puts me down on my knees. I can medicate enough to be functional through the burning cheek, it’s just really painful and disturbing to people around me. Sometimes I’m almost happy when it turns bright red like that so people can actually SEE there is something wrong with me and don’t just think I’m faking it all!
Thanks everyone for the replies. I know exactly what you mean about the boring/stabbing pain. I can handle the shocks a lot easier than feeling like someone is taking an ice pick and shoving my teeth through my gums! That is the worst feeling ever and totally incapacitates me!
The swelling I thought was maybe in my sinuses. It is definitely swollen and aches oh how it aches. I am so thankful for this thread. Once again it confirms it's not "all in my head"! Heather, EXACTLY!! without the redness.
Sometimes I wonder what it is people would like to see when they are looking at me and I know they are suspicious. They want to see something monstrous, but we do not look like monsters. A little swelling won’t do the trick. Perhaps emitting a terrible screeching sound like a violin being savaged would do the trick:) perhaps we all need a soundtrack!
And that is exactly a huge reason why my legal case was lost. i didn't "look" sick or injured. Didn't matter that the county owned the building, put up the fan and it fell on me going at an estimated 25mph. It was all in my head they said.....
You had a fan fall on you? Ouch!
I also experince swelling when I am having a lot of pain. While I feel so bad that all of you are suffering a small part of my being takes comfort in knowing I am not the only one who has this cross to bear. Praying you all have a painless weekend.
That’s the rub for us isn’t it? Glad to know you are not alone, but so sorry that means someone else has to suffer through this horrendous condition.
Yes, then the county attorney was able to convince the jury to come to the conclusion that the county owned the building, created a dangerous situation but wasn't liable. The jury made it to their 3 day weekend, judge made it to his 3 wk. vacation in Russia, and I got stuck with a bill for $58,000 the judge awarded the county in court costs. The county was able to hire a professional testimony dr. who told the jury it was all in my head. I had 8 drs. including one of theirs, all say my injuries were due to the ceiling fan falling on me. I had a torn router cuff, my neurologist testified how well I had responded to the radio surgery I had. Dr. De Salles who is known world wide at UCLA testified. It was $48,000 to appeal it. Didn't have that in my back pocket. The county has forced us into bankruptcy, and has contested it continuously. I am left with having a high deductible, $1,028 for my lyrica, and the pain that goes with TN. Then I fight the battles in my mind that they say is PTSD due to the trauma from the trial and how it tore to the core of me. Each day is a fight to hang on. I live in a small town and people lied because the county threatened them with losing their homes if I won. I have been told that I should move from this area. Not realistic, but it's harder and harder to stay. Wow! Guess it hit a nerve Heather!LOL!! At least I am not alone, you all are here. blessings~~
Wow shepherdgirl! Everything that you have been through sounds so horrible and wrong. Other than the aweful TN symptoms, I can't imagine what you must be going through. I hope that things get better for you very soon.
Each day is a new day with new beginnings. I try and move forward. Some days it's easier than others. When the pain is bad it's really tough but all part of my journey. I don't know how this journey will end, but my faith allows me to know that I know a God who does. I have to rest in that. Thanks for your compassion, I do not receive much of that in my life. Thanks for letting me know I don't walk this journey alone blessings~~
You definitely aren’t alone. Everyone here understands. I felt like nobody I knew could truly understand what I’m going through even though I have some very supportive people in my life. It’s not the same as understanding the pain and frustration and anxiety and depression and fatigue that goes along with this awful condition. Once I found this website, it totally changed my outlook. I think I’m nicer to the people around me now that I can talk about my experiences here. If you ever need support feel free to send me a message (I’m on here a lot) and I will be here to chat and give you that support 