I was just diagnosed with TN on Tuesday. I have been having these pains in the left side of my head for over a year but they have increased in frequency and intensity. I got a referral to a neurologist but it was taking forever to get in (I have to fill out a headache packet first to be assigned a doctor with the right specialty). I ended up in the Emergency Room (for 7 hours) and had a wonderful doctor who was a great listener and very thorough. He did an MRI and it was confirmed. I have trigeminal neuralgia. I started Tegretol that night and have had some relief. However, about 2 hours before my second dose, I started to have repeated flashes of pain. I could tell it was wearing off. Today I have what feels like a pulled muscle in my chest, on the right side, under my arm pit. Is this a side effect? (muscle pain)
Thank you all for welcoming me to this group. I am thankful to have somewhere to go and get answers to my questions and whine when I need to. My husband is very supportive, but I can see this is already wearing on him.