I have never been one to have headaches now they occur almost nightly. I am wondering if they have to do with the timing of my last doses of medication before bed and I wonder which medication is causing them? I am assuming it is the meds? Does anyone else have headaches that feel like your eyes and head are in a vise grip that wake you from sleep and then go away a little after taking a pain med, going back to sleep, are still there when waking at a normal hour and then dissapate? Which TN medication could cause this or is it a new symptom of the TN?
My neuro said mine were migraines. I think it was happening to me when I was in a state of anxiety all the time and was finding it difficult to relax.
Hard to imagine being any more relaxed than being asleep. This is when I have been getting them, in my sleep :(
I called the pharmacy today to find out what I could take over the counter based on all my medications and the response was if I don't take my percocet I may take regular strength Tylenol. Jeeze, another trip to the pharmacy is in order. I want to save my percocet for the rumbles that USUALLY precede an full on attack. But if the headaches get real, real bad I'll just take my percocet. I have had the traditional migraines only twice in my life and these are a wee bit similar.
I did an experiment last night with the timing of taking my meds. This morning I have no headache. I will repeat again tonight and see if I get same result. I took my meds the number of times I was supposed to just not as late.
Hi Phoebe- My entire TN pain is migraines -24/7 since 98 when the nerve above left eyebrow was injured. I do not have the face sensitivity but i do have the tooth and gum pain. My headaches r worse in the morning and have to take med as soon as i get up unless i have the a huge decrease in stress from my mothers abuse and sabotage of my progress. I get added relief as the day goes on and depending on what i am doing physically. I just got my yrs RF procedure that is preformed in the back of the neck and had some set backs after the procedure w/ theft of my meds so i finally am getting back on track. I have no family support and when i got on this site the 3rd day I woke up and was getting around 4 an hr b4 i had 2 take my med but then i did have a big set back by some1 stating the same abusive comments i have had to deal w in the past from my family and ppl in the system. I am trying to over come back but the witnessing of this person brings back those frstrating feelins from hurt and pain. I am so glad ur not having the migraines and u -hopefully- found a way to prevent them, If u start getting them again maybe look back at the day and see if u had a larger amt of stress added??!! I was controlled from98 to 05 and when my mom destroyed my family and career then i was completely debilitated on the couch and the anger makes things worse but i know how i can b stabilized and i can have full quality of life. Hope u r having a god day !!!!
Hi. I am so sorry you are having it so rough. Family problems just make things so much worse. You appear to know what needs to be done though. I know what I need to do about my family issues but am sort of stuck for the next little while.
I don't go to bed with headaches, I just get awakened by them. Although I did not last night. I am experimenting with the time I take my last meds before bed to see if the headaches are from the meds. I just don't understand why they wouldn't give me a headache while up and about. I was taking my last dosages pretty late, around 9pm or 10pm. Last night I took my last days doses around 7ish.
We shall see what happens tonight.
Any chance that it could be dehydration? I know we all probably take a lot of water with our meds, but sometimes that is not enough because we are taking meds. Sounds like you have it figured out, though, if you woke up w/o a headache.
HI phoebe - i just wanted to let u know that several yrs ago (before my family stress) I figured out that fish triggered my migraines so u might want to pay attention to what u may have eaten. I love cat fish and ate it after i was injured several x's and if it caused worse pain at the time i didn't notice it. I think if it had happened prior to then I didn't notice the trigger until after I had several RF's behind neck to block pain signal and the pain came back less each time. I love fish and want to try it again, since it has 8-9 yrs w/o having any. in hopes that it has stopped the trigger!!! I also wanted to ask u if u found out anything from when i explained all the problems i have had w/ my mom, sister and the system and u were going to try something and said u'd let me know!!! Any info would b helpful as i just had a 2nd RF and am feeling so much better w/ the support i have gotten from all but 1 person on here !!!!!! thanx so much and best of luck that head aches stop xoxo kris
Phoebe said:
Hi. I am so sorry you are having it so rough. Family problems just make things so much worse. You appear to know what needs to be done though. I know what I need to do about my family issues but am sort of stuck for the next little while.
I don't go to bed with headaches, I just get awakened by them. Although I did not last night. I am experimenting with the time I take my last meds before bed to see if the headaches are from the meds. I just don't understand why they wouldn't give me a headache while up and about. I was taking my last dosages pretty late, around 9pm or 10pm. Last night I took my last days doses around 7ish.
We shall see what happens tonight.
Hello Kris765. I am sooooo sorry but I have forgotten what it was all about. DARN these meds, I have become a zombie when it comes to remembering things. Please if it's possible remind me a little bit more about the conversation? I was thinking I had caused the TN by biting down on some wadded up paper towel while I was having a tattoo redone. But I went to the dentist AGAIN and he said that wouldn't/hadn't done it. Maybe that was it? Currently I am experimenting with the times I take my meds, perhaps that was what I was talking about? Or maybe checking and seeing if some old nasal/oral surgery is the culprit?
Again, I'm sorry.
Phoebe
I believe it was about my boys being a mess from the removal cuz I had false + hair screen from using topical viscous lidocaine on my gums.My boys were placed w/ their alcoholic father and my 11 yr old w/ her alcoholic father and all being driven around drunk. My son had also had security called on him after my RF cuz wanting to leave and i had to threaten him w/ moving out if he would not take me uz i had been caught driving myself b4. I had to end up throwingmy son out cuz he had stole all my meds that evening y I was sleeping. I have had the system destroy my life cuz when i realized that the lidocaine caused the false + they wouldn't admit that it was a mistake and they were wrong for taking my kids. I have had so much happen as this snowballed into this mess with debilitating me w/o any medicaid when they refused to give it to me cuz of their vengeance from the letters i wrote to the judge proior to each court date. I believe u asked if showing some ppl what i wrote about may help and that u were gonna try to do something and get back to me. Do u know how i can find the prior comments i have left???? We all have problems recalling things and following thru w/ important things when the pain takes over or have a new pain problem!! I've never had a tattoo but i'm assuming u could prob bite down hard enough to effect the nerve - ouch - wanted 1 but now u got me thinking lol!!! best of luck and i will pray u don't get the migraines added on top of the rest. xoxox kris= oh also i had changed my screen name from my full name cuz all the harrassment i receive from the system!!!
My life situation seems somewhat similar to yours but i only have increased pain /depression when my mother continues to knock me down as i advance at all with my condition. I can't stay away completely because she took my daughter from me and accuses me of having a drug problem just to push me over the edge- and it works. My doctor is wonderful but it is the nurses i'm scared of but I think they may have more understanding after security was called on my 20 yr old son at my last RF procedure. I had been caught driving myself froma RF procedure before because i have no 1 to help me and i had to threaten my son that he take me or I was making him move out of our home then he was furious at the length of time it was taking for my procedure - it had been 2 hours since they took me back. He was yelling down the hall for some1 to unhook my IV cause we had been there long enough and the security came and even followed him out to get the car because I assume they thought he was going to leave me. The nurse was very disturbed and i was in no condition to be leaving the procedure but they gave in to his threatening attitude as most ppl do. I told her I would be fine that i was going straight home and eat and lay down so they wheeled me out. I wanted to stop for food but i knew better than to ask!! The great moral of the story was that I did have to throw him out of our home. That night as I was out from the RF procedure he stole all my medication- when he had never stole a pill or $$ from me in all the 14 yrs of my medical condition ( although - my 22 yr old son stole anything of mine he could get his hands on from the time he was in jr. high school) because he seen me suffer from his brother stealing my meds and watch me suffer for days and weeks until it was time for a refill. Are you on an antidepressant or take anti-anxiety medication?? Amitriptyline is and anti-anxiety, anti-depressant, sedative (for some ppl but not me) and has an unlabeled use of headaches and I have to have this for all the reasons listed but i just wish the headaches didn't take over all the chemicals so it did help me sleep !!!!! Having no 1 to support or help me has increasingly destroyed all my quality of life thru the holidays and all it would have taken was my sabotaging mother to let me see my daughter on the holidays but she found out that in the summer I was getting out and meeting ppl and had felt a small amt of normalcy since '05 when she got my kids removed from me and immediately Iwas completely debilitated to the couch from the stress induced pain. My own mom has not stopped in - what -7yrs??? I just joined this sight as a last result of getting support and get my pain back stabilized to get my career back and then a out of town lawyer to get my daughter back. !!!!! If u r not any any depression medication or the one ur on isn't working find 1 that will because i had been on a few b4 I found the 1 that helped!!!!!!!!! God Bless and best of luck:)
now i'll try copy ur response from my comment
Not only do I suffer fro TN I have the honor of suffering from bipolar 1 severe mixed, ADHD, and severe anxiety disorder. I have my problems but nothing that compares to what is described in this thread. I do think I will develop more mental health issues if I don't get this TN business taken care of. I was wondering, has anyone thought of showing this site to those people who are creating such a hostile life? Even judges and other legal people and non-believing medical personell would benefit from seeing some of the posts on this site. I'm going to try something, I'll let you know how it goes.
Hopefully u can remember what u had in mind to what u were going to check into cuz i know over the last 7 yrs i write info down in hopes to get help and then lose or find later and realize i didn't put enough info down to proceed !! thanx so much and keep calm - i am a cry baby so i only increase pain as migraines start by pressure in bridge of nose then i cry which, of course, helps bring it on faster !!xoxox kris
HI phoebe - i just wanted to let u know that several yrs ago (before my family stress) I figured out that fish triggered my migraines so u might want to pay attention to what u may have eaten. I love cat fish and ate it after i was injured several x's and if it caused worse pain at the time i didn't notice it. I think if it had happened prior to then I didn't notice the trigger until after I had several RF's behind neck to block pain signal and the pain came back less each time. I love fish and want to try it again, since it has 8-9 yrs w/o having any. in hopes that it has stopped the trigger!!! I also wanted to ask u if u found out anything from when i explained all the problems i have had w/ my mom, sister and the system and u were going to try something and said u'd let me know!!! Any info would b helpful as i just had a 2nd RF and am feeling so much better w/ the support i have gotten from all but 1 person on here !!!!!! thanx so much and best of luck that head aches stop xoxo kris
Phoebe said:Hi. I am so sorry you are having it so rough. Family problems just make things so much worse. You appear to know what needs to be done though. I know what I need to do about my family issues but am sort of stuck for the next little while.
I don't go to bed with headaches, I just get awakened by them. Although I did not last night. I am experimenting with the time I take my last meds before bed to see if the headaches are from the meds. I just don't understand why they wouldn't give me a headache while up and about. I was taking my last dosages pretty late, around 9pm or 10pm. Last night I took my last days doses around 7ish.
We shall see what happens tonight.
I am dealing with a combination change in weather/hormone headache. But I get these. The TN is separate, and they don't feel the same. I have heard that MRI contrast does that to a lot of people. It sounds miserable.
Kris765, I am sooo sorry but I haven't a clue as to what I could have been checking into :( If it gets figured out I will be happy to respond.
What makes us alike in a rather sad way is that I too suffer from bipolar 1, (severe, mixed) ADHD, and severe anxiety disorder! Wow. Were you on all the same drugs as I for the bipolar? Many of them were/are the same drugs used to treat TN. This is what made me so confused about this whole thing. How could someone already on certain bipolar/TN drugs develop TN pain. Weird.
i'm sorry but i don't know what or who implied that i had any mental problems - i am not bipolar or diagnosed ADHD but i do have anxiety and go thru depression as my mother and the system has been very mentally abusive to me and my kids. My sons lost their entire high school yrs by being thrown in an adult situation and had to listen to their own grandparent, aunts, caseworkers, police, counselors etc, lie about us and they r now a mess. I had my pain controlled from 98-05 when my mother decided to destroy our lives cuz she must have control and i had stopped going around her as she was always hurting my feelings. Losing my kids thru me into uncontrolled debilitating migraines that i have been fighting ~ 7 yrs now - as this torture will not stop and my youngest son was a straight A honor roll student but now is a mess and i don't c any hope 4 him unless i can find some1 to help us. I have been on the sames meds 4 my TN since 99 and i am not sure what meds u take for bipolar that would treat TN as that has never been anything i have had to research 4 my TN condition- i had a laceration above eyebrow which bruised the TN nerve resulting in migraines. I can only imagine how hard it has been for u to try to treat such serious conditions. I will pray 4 u. xoxo
Phoebe said:
Kris765, I am sooo sorry but I haven't a clue as to what I could have been checking into :( If it gets figured out I will be happy to respond.
What makes us alike in a rather sad way is that I too suffer from bipolar 1, (severe, mixed) ADHD, and severe anxiety disorder! Wow. Were you on all the same drugs as I for the bipolar? Many of them were/are the same drugs used to treat TN. This is what made me so confused about this whole thing. How could someone already on certain bipolar/TN drugs develop TN pain. Weird.
Sorry Kris. I was reading from the response you made in another post. You typed it rather that used the quote function. I was responding to my own information :) It was preceded by the words that you were quoting from my post LOL
I guess I have a lot in common with myself :) :)
well thank uPhoebe for a lil humor for us to start the day LOL. I am a blonde so understand completely haha. I get confused also w/ chatting back and forth w/ ppl and get their back grounds mixed up so i am trying to stick to a few amt and then slowly add others!! hope you day is good today!! xoxoKris
yes i get those as well. I had 2 mvd's about 4 years ago and ever since then headaches and ear pain came after that. When I was on Lyrica I had more headaches where now Im back on neurontin and the headaches are better
Kris765…praying for a good result for you today and each day forward. Each detail of your life to iron itself out, starting with pain control and an abundance of peace to fill your heart and mind regardless of what is happening to you or in you (re: pain). TN is hard enough with support, and without it I can only imagine. What I will say, though, was when things were at their worst in my young life, God sent angels in disguise as foster parents, friends, cousins, etc. that provided the support needed to bring me where I am today. In the peace that passes all understanding, your friend, LyndaS
thank u so much lyndas - i found some1 on this site that has TN and lives in my town. we txt,e-mail, and c each other a lot and now i do feel like i'm not alone for the 1st time since 98 when i was hurt. My injury resulted in a 24/7 migraine that has lasted -oh my-14 yrs now but thank God that i found my pain doctor but my mom beats me down when ever i seem to make progress. i have learned not to tell my brother what is going on in my life but he lives in FL and we r from IN. I need his support but since i have some1 now that understands i am trying to focus on us leaning us on each other and my mom can go down- where she belongs !!!!xoxox kris
LyndaS said:
Kris765…praying for a good result for you today and each day forward. Each detail of your life to iron itself out, starting with pain control and an abundance of peace to fill your heart and mind regardless of what is happening to you or in you (re: pain). TN is hard enough with support, and without it I can only imagine. What I will say, though, was when things were at their worst in my young life, God sent angels in disguise as foster parents, friends, cousins, etc. that provided the support needed to bring me where I am today. In the peace that passes all understanding, your friend, LyndaS