Hanging on, barely

Oh how life is full of twists and turns. We were blessed with our first grandchild last week. Life had been in a nice holding pattern, no major ups or downs. Being away, meant my meds got off the schedule they had been on, at the same time the weather had been changing. I have had more flare-ups in the last 72hrs than I have in a very very long time. I am so very very discouraged. fortunately the baby isn't close by so I can distance myself from that emotion, but I still have children at home that need me and thus get the short end of mom again. I hate the way this is all playing out in my life. Just need something to hang onto to know it will all be ok in the end.

Congrats on your first grand baby!!
And gentle (( hugs )) hold onto hope…hope for better days…
Try not to be too hard on yourself, you’ve had several factors occur that contribute to an exacerbation in pain…weather, excitement, stress, travel.
A couple of days and I hope you’ll be back on track!
Take care of you! Mimi xx

Yes, congrats on your grandbaby, that is most exciting! But I understand your frustration, you have such a blessing and excitement and it gets discouraging to then have the flare ups come. But you have a lot to hang on to and for. My life the past 3 years has been nothing but ups and downs, hubby in hospital 2 1/2 years, leg amputated kideny failure (sorry repeat for those that know this), there are days I just feel like I can't keep on as caretaker and be in pain, but then I have some good days and know I can and will keep on. We all get frustrated and discouraged at times, I think that is to be expected with TN, and yes we all wish we had never heard of it let alone have it! You will be in my thoughts and prayers, hopefully once you get back into your routine with meds, etc. the flare ups will calm. I know during them it seems like it willl never end, but keep posting and keep hanging on and know we care.