GPN Developed After ACDF Surgery

Hi! Has anyone developed GPN following an extensive cervical fusion surgery? What has your course of treatment been? Have you had either MVD surgery or nerve blocks and have they been successful? My neurosurgeon doesn't seem to think these standard treatments will work in my case because the source of my nerve irritation is low and most likely due to the excessive manipulation of esophagus, larynx, muscles and nerves during the surgery. I'm at my wit's end and just don't know where to turn. Would love to hear if anyone has had a similar experience following surgery. Thank you!!

Hello

It does not matter what your neurosurgeon believes or not. If you are devastated and the pain is destroying you and your life, the only option is to TRY OUT ALL KINDS OF TREATMENTS.

At least he could perform nerve blocks or (pulse) radio frequency ablation or also sometimes referred to as “radio rhizotomy”. All are minimal invasive.

http://www.ncbi.nlm.nih.gov/pubmed/15765993

A big problem with radio frequency ablations is, that the nerve regenerates within 3 to 18 months and the pain starts again.

I had nerve blocks for my Occipital nerve and it did not provide any pain relieve but we still performed a radio frequency ablation and I am 100% pain free in this area since January.

There is also "deep brain stimulation", pain pumps, "Computed tomography-guided percutaneous trigeminal tractotomy-nucleotomy” (http://www.ncbi.nlm.nih.gov/pubmed/23991818) and may other treatments available.

MVD helps many people, rhizotomy as well.As far as I know, a rhizotomy carries more risks, but has a better chance of curing your pain. http://www.ncbi.nlm.nih.gov/pubmed/23451790

This link provides a good overview of some treatments.http://www.mayfieldclinic.com/PE-Glossopharyngeal.HTM#.VRKQIflfZcY

If your neuro is not willing to help you because he believes that it will not help you, go and find another neurosurgeon.

Believing means knowing nothing!!

If a case is really messed up, the only option is to try things. No certainty no guarantees.

By the way, I had MVD ... made things a lot worse ... "repair" surgery in a few weeks.

Get well

Michael

Yes, that is when mine started. I was told because the carotid sheath was over stretched during surgery. I don't know how long it has been since your surgery. I was told the nerves may calm down in 9 months to 2 years at first. It has been 3 years and My doctor now says the nerves were "frayed" like wires and at this point will never heal.I have tried many drug treatments, most giving me severe side effects. Currently take 1 Tylenol #4, Baclofen 5mg and Valium 2 mg 3 times a day. This gets me by. Though I do keep trying other meds in hopes of better relief. Hope you get referred to a good pain management team and get the help you need. Everyone responds differently to meds, so just keep trying. Focus on one day at a time and the enjoyable things you can do. Don't dwell on what you can't do, being stressed makes the pain worse. Hope for healing for all of us :)