Hi everyone,
As someone in my mid twenties who suffers badly from TN and fibromyalgia, and feeling unheard by doctors who just want me to keep taking more and more drugs at higher and higher doses, I have a huge desire to get TN recognized by a wider audience. I am sick and frustrated with being misconceived and told to act and work like a healthy twenty year old while in the midst of an attack or during a bout of vertigo etc. I don’t want to be perceived as weak but I do want to have more understanding and recognition that living with TN, there are certain restrictions on my day to day life. Now for the end of my rant…
Really, what I want to do, more than anything is to raise awareness. I’m in the process of making over 100 bracelets to raise awareness that I will hand out on Oct 7 this year.
Do you guys. Have any ideas or recommendations of how to get people’s interest or to set up a low cost awareness event that helps to get the message out there?
Here are the bracelets I have been making and wearing. I hope that I can make even more with a little help and support from some friends.
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